The Big Picture: Rethinking Dyslexia (2012) - full transcript
Successful leaders in Business, law, and Politics reflect on their Dyslexic experiences as we follow the story of Dylan, a high school senior who is must overcome the challenges of Dyslexia to achieve his dream of getting into a competitive college. By following his journey as well as other children, we come to see how many myths and misconceptions there are about Dyslexia, and how it offers gifts as well as challenges. Recent findings in neuroscience reveal for the first time that Dyslexia is physiological challenge, and Drs. Sally and Bennett Shaywitz, top experts, explain how Dyslexia works and what the opportunities are.
-We were called on
to read out loud.
I would tremble.
I was afraid.
ALLISON (OFFSCREEN):
You couldn't hide.
Everyone was looking at you.
-The words just come
out wrong.
-I would sit at the
back of the class.
I would look at the blackboard,
and it was just
gobbledy-goop to me.
-All I knew was that I couldn't
do what other kids
were doing.
-Grades were bad.
Self-esteem started
to collapse.
I remember faking being
sick all the time.
-What I was keeping secret was
I really wasn't an A student.
-I could tell, I just wasn't
that confident.
-I sat at a table while-- during
free time while the
other kids were reading books.
I couldn't read.
-It wasn't until I got the
diagnosis that I was really--
it was like, oh, my god.
I understand it now.
[music playing]
-I was actually looking at this
desk 'cause of all the
things I've carved into it.
And I got this star for
completing Boys' Day.
It was funny, because I think
when I did, when I find signed
up the thing for my
name, I must have
spelled my name wrong.
Because on this star for
completing Boys' Day, my name
is D-Y-A-N. So it's kind of
ironic, going to Boys' Day and
yet my name's spelled wrong on
the star certificate thing.
Kind of just sums
everything up.
KYLE (OFFSCREEN): The big early
red flags for me were--
this is really embarrassing,
because I had this whole sense
that I couldn't wait to teach
my child, because I'd been
teaching other kids.
I had every trick
in the world.
I had tricks for memorizing
math facts.
I had tricks for penmanship.
I taught every single subject.
I couldn't wait to
teach my own son.
I thought we were going to--
we were going to make history.
[laughs]
And boy, I got slammed
really early on.
He didn't learn to
write his name.
He didn't learn the alphabet.
His friends, who were either
younger than him or the same
age, were just sailing
right past him.
I can remember--
I think this is in fourth
grade or third grade.
Now that we were such good
readers at that point, we had
to go read to the
kindergartners.
I basically tried
to memorize--
I think it was--
I think it was "The Cat
in the Hat," actually.
Finally, when the day came
to go and read to the
kindergarten class, sitting on
this stool being surrounded by
these little kids staring up
at you, with these cherubic
faces and these beady little
eyes, and I started and right
off the bat I was stuttering and
misplacing words, and it
was so bad.
Like halfway through, the
kindergartners were starting
to correct me.
I remember being probably as
nervous as I had been at that
point in my life.
I would work so hard, and
teachers would just think that
I'm-- that I was slacking off,
that I wasn't doing my work,
that I wasn't trying
hard enough.
I just felt like I was
constantly trying to catch up,
and it was just to no avail.
I just felt like I was never
going to be normal.
I mostly just wanted to be
normal at that point.
KYLE (OFFSCREEN): The minute we
went in for an evaluation
in first grade, I asked the
learning evaluator to look at
whether or not he
was dyslexic.
And she said, oh, no, this
is way too early.
We never diagnose for dyslexia
until third grade.
And of course now, we
know that that is
not at all the case.
In fact, the earlier the
diagnosis, the better.
I remember when Dylan heard
the name, and it
contained it for him.
It was-- all of a sudden, it
wasn't that he just had a bad
brain or a broken brain.
It was that he was dyslexic.
And it was a certain kind of
breakdown, but it didn't
affect his entire brain.
But frankly, at our school, we
were very scared of students
with his profile and really
didn't feel like we could do
right by them.
I had to tell my class that I
was going to be leaving for
the majority of the day, when
I was in fourth grade, to go
to this learning specialized
program.
I realized it's better for
people to understand what I
have than not and be left in the
dark and be left to make
up their own conclusions.
[music playing]
DR. SALLY SHAYWITZ (OFFSCREEN):
Probably reading
is one of the most complex
abilities that
we as humans have.
Speaking is natural.
It's instinctive.
We know it's been around for
hundreds and hundreds of
thousands of years, and our
brains are hardwired for
spoken language.
Written language has been around
5,000 years, and our
brains are not naturally
hardwired for
writing, for reading.
-Hi, Carol.
Hi, Dr. Shaywitz.
-So we got an invitation.
I just wanted to go
over it with you.
-Oh?
OK.
-Sally and I became
very interested in
dyslexia quite naturally.
Sally is a developmental
pediatrician.
I'm a child neurologist.
DR. SALLY SHAYWITZ (OFFSCREEN):
And the most
common problem each of us see
is learning problems.
And by far and away, dyslexia
accounts for 80% to 90% of all
learning problems.
So many people ask me,
could I be dyslexic?
And it's so common, but yet
so many people are not
identified.
So at the Yale Center for
Dyslexia and Creativity, we've
developed a small card that
we give out to people.
"You may be dyslexic if you
read slowly and with much
effort, but you're often the
one to solve the problem.
You can't spell and have messy
handwriting, but your writing
shows terrific imagination.
You have trouble remembering
dates and names, but you also
think out of the box and
grasp the big picture.
You have difficulty retrieving
and pronouncing spoken words,
but you also have an excellent
vocabulary and great ideas."
Really importantly, it lists
the weaknesses, but it also
lists the strengths.
When I first started working
with children who had
dyslexia, it was a
different world.
We didn't have the science.
And children were actually asked
to walk balance beams.
They had visual training,
all sorts of things.
Because at that time,
we didn't know,
what's the basic cause?
Why should otherwise intelligent
children have
trouble learning to read?
-OK.
We're very fortunate to be
working with and interested in
this at a time when the
technology, functional brain
imaging, became possible.
So what he is looking at now is
tasks that are projected on
the screen.
The task that's most central is
looking at nonsense words
and telling us whether the
nonsense words rhyme.
We can compare and examine the
differences between groups of
people who have dyslexia
compared to groups
of people who don't.
DR. SALLY SHAYWITZ (OFFSCREEN):
We now understand
that there's an area of the left
side of the brain in the
back the brain that is
necessary to read
automatically.
When you read automatically, it
means you don't even have
to pay attention.
You see something,
you know it.
If you're dyslexia,
you can't do that.
It's still manual.
You have to pour out so much
energy and so much attention,
it takes you longer.
-The imaging has made dyslexia
just as real as any other
medical disorder.
And the great advance is that
for the first time, we have
made a hidden disability
visible.
BONNIE (OFFSCREEN): Some of the
myths are that dyslexics
see words in reverse, that we're
using some sort of Da
Vinci code when we're
trying to read.
-Oh, you're dyslexic?
Oh, could you read backwards?
-The most annoying aspect of
it is when people equate a
learning disability with
a thinking disability.
-I don't really didn't get--
like, it doesn't go away.
And what really annoys me is
when people say, like, oh,
yeah, I had dyslexia once.
Yeah.
Well, yeah.
I had it.
It's gone now.
Just, no, it's not-- that's
just not how that works.
-All language is in code.
So you're writing, whether
it's Japanese, English,
German, the page is
in some code.
And you learn to look at that
code and convert it to sound
and then to meaning.
-S-P-E-L-L-I-N-G?
-Most people who are good
readers, it becomes a very
highly repetitious thing, and
they don't have to go through
the sounding, the grinding
away in the same
laborious way that--
you know, people who suffer with
dyslexia have to do that.
-There are symbols that they
don't seem to have any real
significance to me.
The hardest part, I think
mostly, is understanding, you
know, usually what
they sound like.
I mean, looking at a book, it
just takes so long because
there's so many letters, these
symbols, all over the page.
I skip sentences.
I get words mixed
up all the time.
I spell completely
phonetically.
Understanding what letter goes
where and why that letter
makes that sound
in that place?
Like, I don't understand that.
Why is it like that?
Oh, this picture was me in
first grade at Riverdale.
Yeah.
This picture was taken
at school.
And there are the kids reading
over there, but I couldn't
read yet, so I would just sit
at my table and draw.
[traffic noises]
GERALYN (OFFSCREEN): Remember
we had the big sleepover at
the school for Skye.
-My first memory of the
word dyslexia--
it's so funny.
I--
I was dating my husband Tyler,
and he had sent me this love
letter, and he misspelled
five words.
I remember turning to my mom
and saying, wow, that's so
interesting.
This guy is so smart and there
are all these misspellings.
What do you think was going
on when he wrote this?
And she said, oh, he's
probably dyslexic.
He's brilliant.
He's a surgeon.
He's probably dyslexia.
The next time I heard the word
was when I was being told
Skye, my daughter,
probably had it.
SKYE (OFFSCREEN): I remember
the day when I got my first
homework packet.
And I remember, like, sitting
on the school bus, and I was
asking a friend, how
do I do this?
And I just couldn't understand
it at all.
I hated school.
I did not want to
go to school.
I just want to not
go to school.
-I would get calls from
the nurse's office
almost every other day.
They said, we have never seen
a child with so much
performance anxiety.
SKYE (OFFSCREEN): I would
pretend I was sick.
I would be tired
in the morning.
'Cause when I went there, I
wouldn't understand anything.
I felt like I wasn't
learning anything.
-After the stomachaches and just
kind of, you know, trying
to figure out what
was going on, I
decided to have her tested.
When I got her tested, I was
told it was dyslexia.
I was so relieved.
It felt like going to the doctor
and being told what's
wrong with you, and it
wasn't her fault.
And I remember being so excited
to tell the school,
oh, this is good news,
this is what it is.
OK?
So we can all like--
and it was just unbelievable,
the response I got.
It was, she needs to
leave the school.
TYLER (OFFSCREEN): The hardest
thing for us to deal with was
trying to convince the school
where she was to have an
interest in her, and to make
an investment in her.
They had decided that because
of her difficulties in
reading, that she would have
difficulties in just learning
everything.
GERALYN (OFFSCREEN): I felt so
badly for Skye, and I remember
thinking, like, where
does she belong?
And how traumatic to start off
school thinking that she can't
succeed in first grade.
SHEREE (OFFSCREEN): For
Sebastian, it's just--
what do you think?
-Saying the words.
-Saying the words.
-Yeah, like--
-And it being corrected
by your sister.
Maybe that's annoying.
-Yeah, that's the most
annoying thing.
SHEREE (OFFSCREEN): Sebastian
was very creative, and that
was clear from a young age.
He loved Legos, and he loved
building things.
And so it was clear that
he's a bright child.
But when he started to have to
write, compose, his spelling
was just really scary.
I started to buy these
reading programs, and
I tortured my son.
Tortured him.
And we received a diagnosis
from professionals.
-I didn't know what
dyslexia was.
But then when I learned, like,
what's it all about, it wasn't
really that much a
surprise to me.
-Each individual person has
a unique experience.
And some part of it requires
that person to figure
out what they need.
And sometimes it's a challenge
to get a 12-and-1/2-year-old
to express what his needs are.
DYLAN (OFFSCREEN): The
unforeseeable conflict between
having dyslexia and going to
high school was lockers.
The combination between
memorizing numbers and then
memorizing directional movement,
it was just all bad.
So I remember coming freshman
year and being so freaked out
that I couldn't open
these lockers.
I had to get my friends
to open it.
And then I'd put my stuff inside
there and not be able
to get my stuff out, and have
to go get a teacher to
unlock it for me.
Finally, for the next four
years, I just crammed
everything in my backpack.
But it kept me from embarrassing
myself at the
locker station.
And still don't know
how to use them.
No idea.
School is really hard.
I feel like if I hadn't had
parents who allowed me to
pursue the arts, and allowed me
to look at film, or allowed
me to be in sports, that kind
of thing, school would have
just been absolutely
miserable.
I would have come home and felt
worthless, and I would
have had nothing to
look forward to.
But art is definitely where
I've found my safety zone.
Drawing has just been sort of
thing that I have done when I
don't understand something.
It's always been sort of the
default when my brain sort of
detaches from--
I don't get what's going on.
I better draw something.
After a while, it just sort of
became what I did most, is
just figure out, OK, so how can
I use what I like to do to
tackle something that's
hard for me?
KYLE (OFFSCREEN): When Dylan
started to go through the
college application process
and decided that he really
wanted to go to Middlebury,
frankly, I was really scared.
How does someone prove on
paper that they are an
excellent problem-solver,
out-of-the-box thinker,
excellent leader?
I knew that was going to be a
challenge because of his poor
test scores, his, for the most
part, very strong grades.
But then he would run into a
teacher who didn't understand
him and penalize him for poor
spelling or something.
I wondered if this process was
going to confirm his worst
fears about his academic
future.
DYLAN (OFFSCREEN): Basically
what happened is I was
wait-listed.
My counselor got a call saying
that, you know, we believe
that, you know, Dylan's a very
qualified student, and that,
you know, he's done
well enough.
But we're afraid that he's had
too much support and that he
wouldn't be able to survive
on his own.
I'd been working so hard to
get good grades and, like,
getting to a place that
would warrant me being
able to go to college.
Having someone think that I'd
been, you know, overly
supported and that I hadn't
really owned the education
that I worked so hard
to create--
that's my worst nightmare,
basically.
ALLISON (OFFSCREEN): My father,
who I love dearly,
never really understood
why I got extra time.
It was sort of his marker that
I had some issue that
separated me from
the other kids.
And, you know, why would he want
his daughter to be lumped
with the special kids
and extra time?
And I think that was
kind of difficult.
-My parents, I don't think, ever
really picked up on it.
And for many, many years, what
I felt was I was basically
putting one over on everybody,
that it was only because I was
willing to work extra hard.
But it didn't really mean
I was an A student.
ALLISON (OFFSCREEN): When I was
in fifth grade, I had just
come back from one of these
evaluations, and I happened to
pick up the phone when
you're not supposed
to pick up the phone.
And the person who had diagnosed
me was talking to
both my parents and said, you
know, Allison's never going to
good with geography.
She's never going to be
good with language.
These are things that
she's just not going
to be able to do.
You know, I'll never forget.
I hung up the phone and
immediately got into
bed, and I'm not--
I'm pretty sure I, as a
fourth-grader or fifth-grader
would do, cried myself
to sleep.
BONNIE (OFFSCREEN): I didn't
study with other people, ever.
Because other people read
faster than I do.
Other people will go at a pace
that I can't keep up with.
I never wanted anybody to think
there was any issue.
ALLISON (OFFSCREEN): It was
actually, in some ways, really
frustrating because they
didn't-- they weren't
diagnosing me as dyslexic.
They were saying you have a
learning issue or a processing
issue or whatever.
So it wasn't even like, OK,
this is my problem.
How can I fix it?
You think that's there's
something wrong with you, or
you think that maybe you're
making it up in your head.
So it was--
OK, you don't have an issue.
You don't need to
study harder.
BONNIE (OFFSCREEN): I thought
I didn't deserve those A's,
that it was all just one
colossal great acting job on
my part, that it got me
this far in life.
But the reality was I really
did have a disability.
-I wasn't diagnosed as dyslexic
until I was 23.
The person who diagnosed me
basically sat me down and
said, you're really smart, but
this is how you process
information and this is
why certain things are
difficult for you.
And it was just nice to hear
someone say that no, this is
what's wrong with you.
This is a way to go about
working with it, and this is
what you can do.
KAREN (OFFSCREEN): I like
the one of the three
of you on the roof.
ALLISON (OFFSCREEN): Look
how little she is.
KAREN (OFFSCREEN): Julia?
ALLISON (OFFSCREEN): Yeah.
KAREN (OFFSCREEN): 'Cause
I was going to--
I think the word dyslexia was
comforting because it allowed
her to understand her strengths
and weaknesses.
But honestly, I also think that
it really could show her
concretely, here's your
intelligence level.
You scored very high on your--
and nobody has ever really
said that to her.
They kept focusing on what
were the deficits.
She proceeded through school,
and each year, she did get
better and better in school.
BONNIE (OFFSCREEN):
Interestingly, college was
actually a lot easier
than high school.
Because with college, you
usually only have one exam,
and it's at the end.
So I had that time
to catch up.
I had that time to become the
expert that I didn't always
get in high school.
It's like the tortoise
and the hare, right?
Why the tortoise would ever
think to race the hare--
it seems crazy, right?
But the tortoise wins.
After four years at Penn, I
went straight to Boston
University for law school.
Luckily, when a client
interviews you, they don't ask
what your reading rate is.
They don't ask what you
got on the LSATs.
They want to know how successful
you are, how good
you are at what you do.
And that's a story I, after,
you know, years of being an
attorney, could tell
positively.
Oh, hi.
Yes.
-I'll just share one story with
you that I thought was so
interesting.
There was a little boy who's
dyslexic, and he was crossing
the street with his dad, and
he saw lots of people
jaywalking.
And he looked up at his dad
and said, well, you know,
those Presbyterians ought
to be more careful.
And of course, he meant
pedestrians.
He knew what he meant, but
the wrong word came out.
-Aaahhhh.
DR. SALLY SHAYWITZ (OFFSCREEN):
The foundation of
reading is speaking.
And spoken language is made
of different sounds.
People who are dyslexic,
these sounds are not as
clear and as crisp.
So for example, if I want to say
the word "mat," I go into
my internal dictionary and I
pull out each sound, Mm, Ah,
and Tuh, put them together,
and I say the word.
I don't even know
I'm doing this.
It's quick.
It's automatic.
People who are dyslexic-- and
a lot of people don't
appreciate it-- often
have trouble pulling
out the right sounds.
Where they may stumble or speak
around the word, or just
not be glib.
And unfortunately, we often
judge people by
how glib they are.
-She's ready to wheel?
Is Dr. [inaudible]
ready to wheel?
I try to speak slowly, because
sometimes for me to get a word
out is difficult.
And I make a lot of
malapropisms.
I'll try to keep that to a
minimum for this video.
In high school, I remember a
social studies teacher asking
me what I wanted to do.
And when I told him that I want
to become a doctor, he
kind of laughed at it.
He thought, well, it would be
lucky if I got into a college,
let alone possibly get
on to medical school.
In medical school, I realized
that I was definitely studying
different than the
other students.
The other students would be
able to read through the
material either the day before
the lecture, or they would
read it that night after.
And for me, specifically in
anatomy, I would have to read
the material once beforehand,
then listen to the lecture,
then read it again.
On, my pick-up again.
But what really hit it home was
looking at the pictures in
the anatomy text, or just
going to the body, the
cadaver, and really seeing
it on the cadaver.
And then I could picture it,
and I was able to see the
relationship between a nerve,
an artery, a vein, a muscle.
And by picturing it,
it really stuck.
I discovered that I had dyslexia
when I picked up a
book written by Sally Shaywitz
and wanted to know all about
dyslexia because my daughter
was diagnosed with it.
And that's when I realized--
you have one of those, like,
moments, an epiphany, where
this is what I've struggled
with my whole life.
Geralyn, my wife, was well aware
of what dyslexia was.
And she would always described
someone as having a learning
disability.
And I was adamant with her that
I had a learning ability.
Because despite not reading
well, I was able to get into
medical school.
And I ended up being elected
to the honor society for
medical schools.
Today, I'm an orthopedic
surgeon.
NARRATOR (OFFSCREEN): While
not all his dreams were
embraced, he was driven
by a higher calling.
This is Richard Branson, and
he's here to service you.
Every last one of you.
-That's one of the most amusing
things that took
place, was in my 50th year, I
had now created 300 companies.
We had the largest group
of public, private
companies in Europe.
And one of my directors took me
on one side at the end of a
board meeting and said, look,
Richard, erm, I have a feeling
that you don't know
the difference
between net and gross.
Please forgive me if
I'm being impolite.
And I admitted, hands up, that
I didn't know the difference
between net and gross.
So he quietly takes me out of
the boardroom, and he puts a
bit of paper down on--
on the table, and he
pencils in the sea.
And then he pencils in a net
coming out of the sea, and he
put some fish in the net, and
says, OK, so that's the profit
at the end of a year,
and there's the fish
that are in the net.
And this is your gross turnover,
the first that are
in the rest of the sea.
Wow, I got it.
I'd now got it.
So I didn't have to say, is
that good news or bad news
anymore when people
were giving me the
figures for that company.
-I've been very fortunate in
having an opportunity to try a
lot of very interesting
lawsuits.
United States Supreme Court,
"Bush v. Gore"
during the 2000 election.
The California law that
prohibited gay and lesbian
citizens from marrying.
Successfully defended CBS in
the case brought by General
William Westmoreland.
I can remember one time, I was
representing the Department of
Justice, suing Microsoft for
anti-trust violations.
I kept referring to "lo-jin,"
as opposed to "log in,"
because you saw the L-O-G-I-N,
and "lo-jin" seemed perfectly
logical to me.
And it took a couple of days
before people sort of got the
courage to tell me that I was
totally mispronouncing kind of
a key concept.
-My handwriting is comical.
I mean, doctors write
brilliantly, with clarity.
I have long said that.
You do not want to see it.
I mean, it's-- still to this
day, I'm always embarrassed to
write a note to people.
That's kind of only my friends,
and I get it typed up
by-- thank god I have
people helping me.
-When I was about 15, I decided
I'd had enough of
school and tried to put
the world right.
I went to see my headmaster.
I told him I was going
to leave school.
And he then said, you're either
going to go to prison
our you're going to become
a billionaire.
-I always thought artists
had a different
way of solving things.
And I thought that was a pretty
cool thing to do.
So it inspired me to see, man,
if they can solve an issue
that way, why can't I solve some
issues in the business
world in a different way?
-I mean, these financial
services companies are still
talking about retirement like
it's some kind of dream.
A vineyard?
Gimme a break.
ANNOUNCER (OFFSCREEN):
Talk to Chuck.
CHARLES SCHWAB (OFFSCREEN):
I just sort of
said, no fuss, no muss.
Integrate all these
things together.
-The good thing about being a
dyslexic, if you're a business
person, is that you simplify
everything.
If we launch a new financial
service company, we won't use
phrases like, you know,
"bid-offer spread," because I
have no idea what the
hell it means.
You know, we say what we mean,
which is important, and I
think that means that
the public trusts
us more as a result.
-One of the things that I
learned growing up was to
listen well and to talk
without notes.
Because I couldn't
read the notes.
And it wasn't because I thought
this was a good idea.
It was because I didn't
have any choice.
But as you older, what you find
is the ability to listen
and to talk extemporaneously.
It can be very valuable.
-One of the things you'll learn,
being dyslexic, is
you've got to learn to suck it
up, because you're going to
fail, and you're going
to fail often.
And you've got to start to
appreciate that, as they say,
that failure is a portal
of discovery.
Mistakes are a portal
of discovery.
The most successful people I
know are the ones that screwed
up the most, learned from their
mistakes, and moved
forward and got up.
-I think that dyslexia is
positively correlated with
creativity.
-When people are working hard
on a particular thing, and
they're thinking about three or
four different ways to get
to the solution, I invariably
say, you know,
I think I got it.
This is where we want to be.
And other people are more
sequential in their thinking.
I intuitively sort of get there,
generally speaking,
much more quickly.
And the ability to see the
entire picture and step back
from it, and not just learn,
but think, I think the
dyslexia teaches that,
in a sense.
Because learning is hard,
it forces you to
align more on thinking.
And as you get out into the
world, it's thinking that is a
lot more prized than learning.
DYLAN (OFFSCREEN): Finally, you
know, I got a phone call
in the middle of class saying,
you know, you've been taken
off the waiting list.
I don't know.
Of course I'm a little
bit nervous about it.
And especially, I feel like also
with Middlebury, too, I
mean, I'm probably the
only kid that got,
you know, the lowest--
I'm probably the lowest
SAT-taker within the entire
population of Middlebury.
And-- and I think this means--
I had this feeling of
sort of taking a
risk on me as a student.
Like, I have a feeling that the
teacher's like, well, he
has dyslexia, you know.
So maybe, maybe this
is true, but let's
just see how he does.
And then if he does well, then
this means that kids with
dyslexia can do well in this
sort of intense academic
environment.
So I almost feel, like, an
obligation that I have to do
well so that other kids with
dyslexia can feel comfortable
in this environment.
Scary, but I'm excited for it.
DR. SALLY SHAYWITZ (OFFSCREEN):
Knowing what we
now know about dyslexia,
you can be the smartest
person in the world.
You can even be a Nobel
Prize-winner.
You can be very motivated and
try so hard, but you still
won't read quickly.
So what you do about that?
You give the person what's
called an accommodation.
That is not giving
you answers.
You just allow them a little
more extra time to read.
-My main problem in taking
tests is that I read the
problem wrong.
It's usually exhausting, going
into your mind when you're
trying to find a word.
The problem's probably not
going to be right.
Mix up these words.
For the rest of the test.
How long is going to take?
[interposing voices]
Time.
Time.
Time.
[boom]
-People who are dyslexic would
prefer not to need extra time.
They don't like to read.
And they would rather not sit
for an extra hour or an extra
15 minutes or whatever it is.
Dyslexia robs a person
of time.
Having accommodations
returns it.
We've learned that if you're
not dyslexic and you have
extra time, you might get
a few extra points.
Or because you have more time
you need, you might go down,
because you'll change a good
answer to a bad answer.
So the only people who actually
go up substantially
are people who are dyslexic.
-Think of any suit.
SHEREE (OFFSCREEN): I think
the one thing that really
annoys me is when people
say, he's so smart.
He's doing better
than other kids.
You know, like challenging the
idea that he's dyslexic.
If he's doing a B+ but he can
do an A+, then he should be
supported so that he can do the
A+, because that's within
his capacity.
People struggle with that
notion, because they think
he's getting a leg up, whereas
it's actually evening the
playing field.
DAVID BOIES (OFFSCREEN): Life
is not a timed test.
What matters is how well
you do the job.
And very rarely does it really
matter whether you do it in 55
minutes or 75 minutes.
People who don't understand
dyslexia say things like,
well, extra time on
tests is going to
give an unfair advantage.
Those are people who have such
a narrow view of testing that
they think that what you really
are trying to find out
is how many things have people
memorized, and how
fast can they read?
Those are just proxies.
What you really want to know
is how successful is this
person going to be in really
thinking and developing and
creating things?
Those are the kinds of things
that are really important.
And so when people talk about
fighting extra time for people
with dyslexia, they just don't
understand what the
process of life is.
-Um, let me do the end.
And see, it's not
just swimming.
It's water polo, field hockey,
you know, you name it.
I think along the way, when
things were difficult for her,
she's a very talented athlete.
She'd often say to me, well, I
may not have done well on that
test, but nobody in my class
can swim 50 breaststroke as
quickly as I can.
And that's gave her some
confidence in other areas, and
discipline.
And I saw that discipline
transfer to her work habits in
school that took time
to develop.
ALLISON (OFFSCREEN): No one ever
gave me a packet on what
to do or the best way to
learn, or if you're not
learning this way, you should go
back and do it another way.
But one of the things that I've
learned in particular is
that I need flashcards.
I'm not one of those people who
can just breeze through
things and memorize a sheet.
So I made tons and tons of
flashcards for everything.
Boxes of flashcards.
I might look really silly.
People may laugh at me.
But end of the day, I'm going to
do well on the test because
I have, you know, 500 flashcards
sitting on my desk.
-I realized the only way
I can read is if I
underline or highlight.
And then I'll take what I've
read after I've highlighted or
underlined and I'll basically
do my own
"Cliff Note" versions.
I have all these binders in my
house of books I've read over
the years, my own "Cliff
Note" versions.
-I had a lot of my books on
tape, because it allowed me to
understand the story and what
the author was trying to say
without being caught up
between the wordplay.
-I would always take notes,
and then I would
take notes of my notes.
And I just kept boiling it down
until I knew it by heart.
-If you're having a meeting, and
sort of eight or ten ideas
come out of that meeting, if
you don't write it down,
you're only going to remember
one or two.
And the rest will go disappear
on the wind.
So I will write lists of
everything that's been said.
That has been invaluable in
building the Virgin empire.
-Today, when I read, I almost go
through in my mind, as I'm
reading the word, almost
spelling it out to myself as
if I were to type
on the computer.
And I sometimes even tap it
out with my feet as if I'm
playing a keyboard
with my toes.
-There you go.
-Thank you.
Have a nice day.
TYLER (OFFSCREEN): Finally, my
wife and I both thought that
the best thing for our daughter
would be to take her
out of her school.
And we got her enrolled into a
school which specializes for
kids with dyslexia.
GERALYN (OFFSCREEN): While it
was very difficult to put her
in a special school, I
think ultimately, it
was the biggest gift.
Skye always says that Windward
taught her how
to crack the code.
And the way she talks about
her dyslexia is Mommy, I
cracked the code.
TYLER (OFFSCREEN): She shined
in that school.
And within a few months of
being there, she had that
curiosity again and that
desire to learn.
-I look at where Skye is now
in her mainstream school,
which is so rigorous, and I
think that being in that real
situation gave her
such a jumpstart.
She's really stepped up to
the academic challenge.
SKYE (OFFSCREEN): When I was,
like, eight, I would always
do, like, li-brar-y
to help me spell.
-I do that sometimes.
-Overall, sixth grade has
been a little different.
When someone called me mentally
retarded because I
can't read or because
I have dyslexia.
And you know, I didn't really
find it offensive.
I just found it actually funny
that someone would even say
that as a comeback.
You know, maybe if I was
younger, like if I was six
again, I would have, like,
gotten really upset.
But now I just find it funny
that people would even try
and, like, make a
joke out of it.
COACH (OFFSCREEN): Five
six, seven, eight.
Karate chop, one, and two.
SKYE (OFFSCREEN): I love
dance so much.
Especially I love competition,
because when I'm on the stage,
I think about all the drama
I've had this year.
You know, some of my classes, I
haven't been doing well in.
And I just dance all
my feelings out.
[playing notes on piano]
TYLER (OFFSCREEN): It brings me
incredible joy just to see
her perform and not hide herself
the way I hid myself
when I was her age.
-And why was her accomplishment
so important?
Skye?
-Um, well, Jessica Watson,
she sailed.
-Skye will be able to do what
she has her heart set on.
ALLISON (OFFSCREEN): And that
kind of kept me going, even
though, you know, it might have
taken me longer to read a
book or read a poem,
I just really loved
learning and reading.
I've really tried to become good
at things that someone
once said that I couldn't do.
KAREN (OFFSCREEN): I told the
person who had done Allison's
testing in fifth grade--
she lives in our town, and I ran
into her and said, guess
where Allison is?
Oh, she just graduated
University of Chicago, double
major in history
and philosophy.
I think the woman, like, you
know, practically fell over.
They were saying she
can't do music.
She shouldn't take a
foreign language.
It made it sound like her life
would be limited in some way.
And what I've been so overjoyed
and sort of letting
the breath out is to see
she got into her
first-choice college.
She gets the job she wanted.
She just takes a
little longer.
And whether it's working on
her-- as a reporter and
putting in the extra hours, and
not meeting the people at
the bar to get the good story
or write her thesis, she's
willing to do that.
ALLISON (OFFSCREEN): I
finished my thesis.
In the comments that I got back,
one of my professors
laid out everything.
You set the bar at trying
to explain this really
complicated historical
process.
It's a very original idea.
And bravo, you accomplished
it.
After I finished, it was just
this moment of, like, wow, I
just wrote a 74-page document,
and, like, I'm
still ready to go.
You know, like, what's next?
DYLAN (OFFSCREEN): I had no idea
if I was going to be able
to do it or not.
But once I got to Middlebury,
it was actually really
interesting.
They have this counselor who's
part of the CTLR, this, like,
center for something having to
do with, like, learning, and--
I don't know what the
abbreviation's actually for.
But I went and talked to this
woman there, and she said
something really interesting
thing.
She's like, well, Middlebury
accepted over, like, you know,
like 30 or 40 kids with learning
disabilities this
year in the class, so you're
definitely not alone in
dealing with this situation.
And it was really great, because
I realize that they
have kids with dyslexia.
They know exactly how
to deal with it.
They only allowed me one
semester's worth of
accommodations because by
government things or something
like that, I have to have
an updated evaluation.
You know, it has to be done.
-Have you been to the
center before?
-No.
I've never even been
to New Haven.
So this is-- this is all
a new experience.
-This is it.
DYLAN (OFFSCREEN): The purpose
of all this retesting, I'm
kind of confused about.
Because they asked that I come
and get retested here.
But I'm--
from where I'm concerned,
it's not something that
just sort goes away.
DR. SALLY SHAYWITZ (OFFSCREEN):
You are correct.
There is no reason.
If we're dealing in in a world
of science and reason, there's
absolutely no reason
to be retested.
And if we've learned one thing,
it's that dyslexia
doesn't go away.
There's always going
to be challenges.
-Yeah.
-But what--
what I would hope would happen
with society is the artificial
barriers would fall.
The slow reading will
always be there.
I don't think you're ever going
to be a great speller.
-Nope.
-And I don't know what you're
handwriting's like, but I
don't think--
-Not great.
-I don't think--
but so what?
Dyslexia is basically
a paradox.
I like to describe it as an
island of a weakness in
getting to the sounds of words,
but surrounded by a sea
of strength in critical
thinking, in problem-solving,
in reasoning--
the kind of things you can't
teach, but it's really good if
you have them.
And people who are dyslexic
really have them.
-Every achievement that I make,
it's like, OK, well, I
was able to do that.
Let's see if I can just
go for this, too.
I was really prepared for him
to struggle when he hit his
college environment.
And the first semester, I was
really relieved to hear that
he was not only surviving,
but thriving.
But it was when he called me
to tell me that he had made
honors in his first year of
college, I literally had to
sit down on a bench, and
I started to cry.
And then I was really scared
that he was going to be able
to tell that it had moved me.
Because I wanted him to know
that I had faith in him beyond
these external measures.
He said to me, I know,
Mom, I'm on a list.
And I paused, and he said, you
know, it's good to be on a
list, especially for all those
people who believed in me and
who took a chance on me,
and now I'm on a list.
I maybe had ditched the academic
super-stardom plans
for him, but he hasn't ditched
them for himself.
KAREN (OFFSCREEN): In our
family, we kind of laugh and
say, oh, we care about
the effort.
We don't care about the grade.
Because I know that
this is an arc.
School is an arc.
And life is a long time, and how
you're performing in Mrs.
Livowitz's fourth grade is
actually a really small piece
of your life.
And I think it's important for
parents to keep their eye on
the big picture.
DAVID BOIES (OFFSCREEN): One of
the ironies of dyslexia is
the further along you get,
the easier it becomes.
It's the willingness to
continue, the patience to
continue, the perseverance,
that is critical
when you have dyslexia.
-Even if you feel uncomfortable
doing it, you
have to push yourself to
do whatever it takes.
-The biggest mistake that
someone could make
is think that I'm--
the only way I can get through
this is pretend like I don't
have dyslexia, and just
have to work so
hard to become normal.
That's just impossible,
because, like,
your brain is different.
But it doesn't mean that you
can't still do the things that
you want to do.
It's so important
to just own it.
Just totally own it.
DR. SALLY SHAYWITZ (OFFSCREEN):
So that means
there are 10 million in the
US who are dyslexic.
Every class has children who
are struggling readers.
And if we can get all the people
who care about dyslexia
to come forward and joint the
community of people who care
and want to change society's
perceptions, we could actually
make promise.
DR. TOBY "DELOS" COSGROVE
(OFFSCREEN): I think the only
reason I got into medical
school was
because I had an interview.
The fact that they've, at a very
early age, have gone over
a lot of hurdles, and they've
overcome them.
And so for admissions people,
you've already realized that
you have got kids who
are persistent.
And that persistence will take
you through a tremendous
number of things.
CHARLES SCHWAB (OFFSCREEN):
One in five kids
are born with it.
Comes through their DNA.
Most don't get attention.
Most go through life never
knowing, never
achieving their potential.
SKYE (OFFSCREEN): I know I will
do something that makes a
difference in this world,
whether it's finding a way to
clean the water in Africa
or discovering
a new cure to cancer--
who knows?
I can do anything.
[music playing]
-I'm Chuck Schwab.
I'm a lifelong person who
suffers from dyslexia.
-I'm David Boies, and
I'm dyslexic.
-I'm Gavin Newsom,
and I'm dyslexic.
-I'm Allison Schwartz,
and I'm dyslexic.
-I am who I am.
-My name is Leilani,
and I am dyslexic.
-My name is Jason,
and I'm dyslexic.
-Hi, my name is Georgia,
and I'm dyslexic.
-I'm Camille, and
I'm dyslexic.
Hi, I'm Jonathan, and
I'm dyslexic.
-Hi, I'm Olivia, and
I'm dyslexic.
Hi, my name is Bethany,
and I am dyslexic.
-I'm Melinda, and
I have dyslexia.
-Hi, I'm Becky, and
I have dyslexia.
-Hi, my name is [inaudible],
and I have dyslexia.
[music playing]
[music playing]
to read out loud.
I would tremble.
I was afraid.
ALLISON (OFFSCREEN):
You couldn't hide.
Everyone was looking at you.
-The words just come
out wrong.
-I would sit at the
back of the class.
I would look at the blackboard,
and it was just
gobbledy-goop to me.
-All I knew was that I couldn't
do what other kids
were doing.
-Grades were bad.
Self-esteem started
to collapse.
I remember faking being
sick all the time.
-What I was keeping secret was
I really wasn't an A student.
-I could tell, I just wasn't
that confident.
-I sat at a table while-- during
free time while the
other kids were reading books.
I couldn't read.
-It wasn't until I got the
diagnosis that I was really--
it was like, oh, my god.
I understand it now.
[music playing]
-I was actually looking at this
desk 'cause of all the
things I've carved into it.
And I got this star for
completing Boys' Day.
It was funny, because I think
when I did, when I find signed
up the thing for my
name, I must have
spelled my name wrong.
Because on this star for
completing Boys' Day, my name
is D-Y-A-N. So it's kind of
ironic, going to Boys' Day and
yet my name's spelled wrong on
the star certificate thing.
Kind of just sums
everything up.
KYLE (OFFSCREEN): The big early
red flags for me were--
this is really embarrassing,
because I had this whole sense
that I couldn't wait to teach
my child, because I'd been
teaching other kids.
I had every trick
in the world.
I had tricks for memorizing
math facts.
I had tricks for penmanship.
I taught every single subject.
I couldn't wait to
teach my own son.
I thought we were going to--
we were going to make history.
[laughs]
And boy, I got slammed
really early on.
He didn't learn to
write his name.
He didn't learn the alphabet.
His friends, who were either
younger than him or the same
age, were just sailing
right past him.
I can remember--
I think this is in fourth
grade or third grade.
Now that we were such good
readers at that point, we had
to go read to the
kindergartners.
I basically tried
to memorize--
I think it was--
I think it was "The Cat
in the Hat," actually.
Finally, when the day came
to go and read to the
kindergarten class, sitting on
this stool being surrounded by
these little kids staring up
at you, with these cherubic
faces and these beady little
eyes, and I started and right
off the bat I was stuttering and
misplacing words, and it
was so bad.
Like halfway through, the
kindergartners were starting
to correct me.
I remember being probably as
nervous as I had been at that
point in my life.
I would work so hard, and
teachers would just think that
I'm-- that I was slacking off,
that I wasn't doing my work,
that I wasn't trying
hard enough.
I just felt like I was
constantly trying to catch up,
and it was just to no avail.
I just felt like I was never
going to be normal.
I mostly just wanted to be
normal at that point.
KYLE (OFFSCREEN): The minute we
went in for an evaluation
in first grade, I asked the
learning evaluator to look at
whether or not he
was dyslexic.
And she said, oh, no, this
is way too early.
We never diagnose for dyslexia
until third grade.
And of course now, we
know that that is
not at all the case.
In fact, the earlier the
diagnosis, the better.
I remember when Dylan heard
the name, and it
contained it for him.
It was-- all of a sudden, it
wasn't that he just had a bad
brain or a broken brain.
It was that he was dyslexic.
And it was a certain kind of
breakdown, but it didn't
affect his entire brain.
But frankly, at our school, we
were very scared of students
with his profile and really
didn't feel like we could do
right by them.
I had to tell my class that I
was going to be leaving for
the majority of the day, when
I was in fourth grade, to go
to this learning specialized
program.
I realized it's better for
people to understand what I
have than not and be left in the
dark and be left to make
up their own conclusions.
[music playing]
DR. SALLY SHAYWITZ (OFFSCREEN):
Probably reading
is one of the most complex
abilities that
we as humans have.
Speaking is natural.
It's instinctive.
We know it's been around for
hundreds and hundreds of
thousands of years, and our
brains are hardwired for
spoken language.
Written language has been around
5,000 years, and our
brains are not naturally
hardwired for
writing, for reading.
-Hi, Carol.
Hi, Dr. Shaywitz.
-So we got an invitation.
I just wanted to go
over it with you.
-Oh?
OK.
-Sally and I became
very interested in
dyslexia quite naturally.
Sally is a developmental
pediatrician.
I'm a child neurologist.
DR. SALLY SHAYWITZ (OFFSCREEN):
And the most
common problem each of us see
is learning problems.
And by far and away, dyslexia
accounts for 80% to 90% of all
learning problems.
So many people ask me,
could I be dyslexic?
And it's so common, but yet
so many people are not
identified.
So at the Yale Center for
Dyslexia and Creativity, we've
developed a small card that
we give out to people.
"You may be dyslexic if you
read slowly and with much
effort, but you're often the
one to solve the problem.
You can't spell and have messy
handwriting, but your writing
shows terrific imagination.
You have trouble remembering
dates and names, but you also
think out of the box and
grasp the big picture.
You have difficulty retrieving
and pronouncing spoken words,
but you also have an excellent
vocabulary and great ideas."
Really importantly, it lists
the weaknesses, but it also
lists the strengths.
When I first started working
with children who had
dyslexia, it was a
different world.
We didn't have the science.
And children were actually asked
to walk balance beams.
They had visual training,
all sorts of things.
Because at that time,
we didn't know,
what's the basic cause?
Why should otherwise intelligent
children have
trouble learning to read?
-OK.
We're very fortunate to be
working with and interested in
this at a time when the
technology, functional brain
imaging, became possible.
So what he is looking at now is
tasks that are projected on
the screen.
The task that's most central is
looking at nonsense words
and telling us whether the
nonsense words rhyme.
We can compare and examine the
differences between groups of
people who have dyslexia
compared to groups
of people who don't.
DR. SALLY SHAYWITZ (OFFSCREEN):
We now understand
that there's an area of the left
side of the brain in the
back the brain that is
necessary to read
automatically.
When you read automatically, it
means you don't even have
to pay attention.
You see something,
you know it.
If you're dyslexia,
you can't do that.
It's still manual.
You have to pour out so much
energy and so much attention,
it takes you longer.
-The imaging has made dyslexia
just as real as any other
medical disorder.
And the great advance is that
for the first time, we have
made a hidden disability
visible.
BONNIE (OFFSCREEN): Some of the
myths are that dyslexics
see words in reverse, that we're
using some sort of Da
Vinci code when we're
trying to read.
-Oh, you're dyslexic?
Oh, could you read backwards?
-The most annoying aspect of
it is when people equate a
learning disability with
a thinking disability.
-I don't really didn't get--
like, it doesn't go away.
And what really annoys me is
when people say, like, oh,
yeah, I had dyslexia once.
Yeah.
Well, yeah.
I had it.
It's gone now.
Just, no, it's not-- that's
just not how that works.
-All language is in code.
So you're writing, whether
it's Japanese, English,
German, the page is
in some code.
And you learn to look at that
code and convert it to sound
and then to meaning.
-S-P-E-L-L-I-N-G?
-Most people who are good
readers, it becomes a very
highly repetitious thing, and
they don't have to go through
the sounding, the grinding
away in the same
laborious way that--
you know, people who suffer with
dyslexia have to do that.
-There are symbols that they
don't seem to have any real
significance to me.
The hardest part, I think
mostly, is understanding, you
know, usually what
they sound like.
I mean, looking at a book, it
just takes so long because
there's so many letters, these
symbols, all over the page.
I skip sentences.
I get words mixed
up all the time.
I spell completely
phonetically.
Understanding what letter goes
where and why that letter
makes that sound
in that place?
Like, I don't understand that.
Why is it like that?
Oh, this picture was me in
first grade at Riverdale.
Yeah.
This picture was taken
at school.
And there are the kids reading
over there, but I couldn't
read yet, so I would just sit
at my table and draw.
[traffic noises]
GERALYN (OFFSCREEN): Remember
we had the big sleepover at
the school for Skye.
-My first memory of the
word dyslexia--
it's so funny.
I--
I was dating my husband Tyler,
and he had sent me this love
letter, and he misspelled
five words.
I remember turning to my mom
and saying, wow, that's so
interesting.
This guy is so smart and there
are all these misspellings.
What do you think was going
on when he wrote this?
And she said, oh, he's
probably dyslexic.
He's brilliant.
He's a surgeon.
He's probably dyslexia.
The next time I heard the word
was when I was being told
Skye, my daughter,
probably had it.
SKYE (OFFSCREEN): I remember
the day when I got my first
homework packet.
And I remember, like, sitting
on the school bus, and I was
asking a friend, how
do I do this?
And I just couldn't understand
it at all.
I hated school.
I did not want to
go to school.
I just want to not
go to school.
-I would get calls from
the nurse's office
almost every other day.
They said, we have never seen
a child with so much
performance anxiety.
SKYE (OFFSCREEN): I would
pretend I was sick.
I would be tired
in the morning.
'Cause when I went there, I
wouldn't understand anything.
I felt like I wasn't
learning anything.
-After the stomachaches and just
kind of, you know, trying
to figure out what
was going on, I
decided to have her tested.
When I got her tested, I was
told it was dyslexia.
I was so relieved.
It felt like going to the doctor
and being told what's
wrong with you, and it
wasn't her fault.
And I remember being so excited
to tell the school,
oh, this is good news,
this is what it is.
OK?
So we can all like--
and it was just unbelievable,
the response I got.
It was, she needs to
leave the school.
TYLER (OFFSCREEN): The hardest
thing for us to deal with was
trying to convince the school
where she was to have an
interest in her, and to make
an investment in her.
They had decided that because
of her difficulties in
reading, that she would have
difficulties in just learning
everything.
GERALYN (OFFSCREEN): I felt so
badly for Skye, and I remember
thinking, like, where
does she belong?
And how traumatic to start off
school thinking that she can't
succeed in first grade.
SHEREE (OFFSCREEN): For
Sebastian, it's just--
what do you think?
-Saying the words.
-Saying the words.
-Yeah, like--
-And it being corrected
by your sister.
Maybe that's annoying.
-Yeah, that's the most
annoying thing.
SHEREE (OFFSCREEN): Sebastian
was very creative, and that
was clear from a young age.
He loved Legos, and he loved
building things.
And so it was clear that
he's a bright child.
But when he started to have to
write, compose, his spelling
was just really scary.
I started to buy these
reading programs, and
I tortured my son.
Tortured him.
And we received a diagnosis
from professionals.
-I didn't know what
dyslexia was.
But then when I learned, like,
what's it all about, it wasn't
really that much a
surprise to me.
-Each individual person has
a unique experience.
And some part of it requires
that person to figure
out what they need.
And sometimes it's a challenge
to get a 12-and-1/2-year-old
to express what his needs are.
DYLAN (OFFSCREEN): The
unforeseeable conflict between
having dyslexia and going to
high school was lockers.
The combination between
memorizing numbers and then
memorizing directional movement,
it was just all bad.
So I remember coming freshman
year and being so freaked out
that I couldn't open
these lockers.
I had to get my friends
to open it.
And then I'd put my stuff inside
there and not be able
to get my stuff out, and have
to go get a teacher to
unlock it for me.
Finally, for the next four
years, I just crammed
everything in my backpack.
But it kept me from embarrassing
myself at the
locker station.
And still don't know
how to use them.
No idea.
School is really hard.
I feel like if I hadn't had
parents who allowed me to
pursue the arts, and allowed me
to look at film, or allowed
me to be in sports, that kind
of thing, school would have
just been absolutely
miserable.
I would have come home and felt
worthless, and I would
have had nothing to
look forward to.
But art is definitely where
I've found my safety zone.
Drawing has just been sort of
thing that I have done when I
don't understand something.
It's always been sort of the
default when my brain sort of
detaches from--
I don't get what's going on.
I better draw something.
After a while, it just sort of
became what I did most, is
just figure out, OK, so how can
I use what I like to do to
tackle something that's
hard for me?
KYLE (OFFSCREEN): When Dylan
started to go through the
college application process
and decided that he really
wanted to go to Middlebury,
frankly, I was really scared.
How does someone prove on
paper that they are an
excellent problem-solver,
out-of-the-box thinker,
excellent leader?
I knew that was going to be a
challenge because of his poor
test scores, his, for the most
part, very strong grades.
But then he would run into a
teacher who didn't understand
him and penalize him for poor
spelling or something.
I wondered if this process was
going to confirm his worst
fears about his academic
future.
DYLAN (OFFSCREEN): Basically
what happened is I was
wait-listed.
My counselor got a call saying
that, you know, we believe
that, you know, Dylan's a very
qualified student, and that,
you know, he's done
well enough.
But we're afraid that he's had
too much support and that he
wouldn't be able to survive
on his own.
I'd been working so hard to
get good grades and, like,
getting to a place that
would warrant me being
able to go to college.
Having someone think that I'd
been, you know, overly
supported and that I hadn't
really owned the education
that I worked so hard
to create--
that's my worst nightmare,
basically.
ALLISON (OFFSCREEN): My father,
who I love dearly,
never really understood
why I got extra time.
It was sort of his marker that
I had some issue that
separated me from
the other kids.
And, you know, why would he want
his daughter to be lumped
with the special kids
and extra time?
And I think that was
kind of difficult.
-My parents, I don't think, ever
really picked up on it.
And for many, many years, what
I felt was I was basically
putting one over on everybody,
that it was only because I was
willing to work extra hard.
But it didn't really mean
I was an A student.
ALLISON (OFFSCREEN): When I was
in fifth grade, I had just
come back from one of these
evaluations, and I happened to
pick up the phone when
you're not supposed
to pick up the phone.
And the person who had diagnosed
me was talking to
both my parents and said, you
know, Allison's never going to
good with geography.
She's never going to be
good with language.
These are things that
she's just not going
to be able to do.
You know, I'll never forget.
I hung up the phone and
immediately got into
bed, and I'm not--
I'm pretty sure I, as a
fourth-grader or fifth-grader
would do, cried myself
to sleep.
BONNIE (OFFSCREEN): I didn't
study with other people, ever.
Because other people read
faster than I do.
Other people will go at a pace
that I can't keep up with.
I never wanted anybody to think
there was any issue.
ALLISON (OFFSCREEN): It was
actually, in some ways, really
frustrating because they
didn't-- they weren't
diagnosing me as dyslexic.
They were saying you have a
learning issue or a processing
issue or whatever.
So it wasn't even like, OK,
this is my problem.
How can I fix it?
You think that's there's
something wrong with you, or
you think that maybe you're
making it up in your head.
So it was--
OK, you don't have an issue.
You don't need to
study harder.
BONNIE (OFFSCREEN): I thought
I didn't deserve those A's,
that it was all just one
colossal great acting job on
my part, that it got me
this far in life.
But the reality was I really
did have a disability.
-I wasn't diagnosed as dyslexic
until I was 23.
The person who diagnosed me
basically sat me down and
said, you're really smart, but
this is how you process
information and this is
why certain things are
difficult for you.
And it was just nice to hear
someone say that no, this is
what's wrong with you.
This is a way to go about
working with it, and this is
what you can do.
KAREN (OFFSCREEN): I like
the one of the three
of you on the roof.
ALLISON (OFFSCREEN): Look
how little she is.
KAREN (OFFSCREEN): Julia?
ALLISON (OFFSCREEN): Yeah.
KAREN (OFFSCREEN): 'Cause
I was going to--
I think the word dyslexia was
comforting because it allowed
her to understand her strengths
and weaknesses.
But honestly, I also think that
it really could show her
concretely, here's your
intelligence level.
You scored very high on your--
and nobody has ever really
said that to her.
They kept focusing on what
were the deficits.
She proceeded through school,
and each year, she did get
better and better in school.
BONNIE (OFFSCREEN):
Interestingly, college was
actually a lot easier
than high school.
Because with college, you
usually only have one exam,
and it's at the end.
So I had that time
to catch up.
I had that time to become the
expert that I didn't always
get in high school.
It's like the tortoise
and the hare, right?
Why the tortoise would ever
think to race the hare--
it seems crazy, right?
But the tortoise wins.
After four years at Penn, I
went straight to Boston
University for law school.
Luckily, when a client
interviews you, they don't ask
what your reading rate is.
They don't ask what you
got on the LSATs.
They want to know how successful
you are, how good
you are at what you do.
And that's a story I, after,
you know, years of being an
attorney, could tell
positively.
Oh, hi.
Yes.
-I'll just share one story with
you that I thought was so
interesting.
There was a little boy who's
dyslexic, and he was crossing
the street with his dad, and
he saw lots of people
jaywalking.
And he looked up at his dad
and said, well, you know,
those Presbyterians ought
to be more careful.
And of course, he meant
pedestrians.
He knew what he meant, but
the wrong word came out.
-Aaahhhh.
DR. SALLY SHAYWITZ (OFFSCREEN):
The foundation of
reading is speaking.
And spoken language is made
of different sounds.
People who are dyslexic,
these sounds are not as
clear and as crisp.
So for example, if I want to say
the word "mat," I go into
my internal dictionary and I
pull out each sound, Mm, Ah,
and Tuh, put them together,
and I say the word.
I don't even know
I'm doing this.
It's quick.
It's automatic.
People who are dyslexic-- and
a lot of people don't
appreciate it-- often
have trouble pulling
out the right sounds.
Where they may stumble or speak
around the word, or just
not be glib.
And unfortunately, we often
judge people by
how glib they are.
-She's ready to wheel?
Is Dr. [inaudible]
ready to wheel?
I try to speak slowly, because
sometimes for me to get a word
out is difficult.
And I make a lot of
malapropisms.
I'll try to keep that to a
minimum for this video.
In high school, I remember a
social studies teacher asking
me what I wanted to do.
And when I told him that I want
to become a doctor, he
kind of laughed at it.
He thought, well, it would be
lucky if I got into a college,
let alone possibly get
on to medical school.
In medical school, I realized
that I was definitely studying
different than the
other students.
The other students would be
able to read through the
material either the day before
the lecture, or they would
read it that night after.
And for me, specifically in
anatomy, I would have to read
the material once beforehand,
then listen to the lecture,
then read it again.
On, my pick-up again.
But what really hit it home was
looking at the pictures in
the anatomy text, or just
going to the body, the
cadaver, and really seeing
it on the cadaver.
And then I could picture it,
and I was able to see the
relationship between a nerve,
an artery, a vein, a muscle.
And by picturing it,
it really stuck.
I discovered that I had dyslexia
when I picked up a
book written by Sally Shaywitz
and wanted to know all about
dyslexia because my daughter
was diagnosed with it.
And that's when I realized--
you have one of those, like,
moments, an epiphany, where
this is what I've struggled
with my whole life.
Geralyn, my wife, was well aware
of what dyslexia was.
And she would always described
someone as having a learning
disability.
And I was adamant with her that
I had a learning ability.
Because despite not reading
well, I was able to get into
medical school.
And I ended up being elected
to the honor society for
medical schools.
Today, I'm an orthopedic
surgeon.
NARRATOR (OFFSCREEN): While
not all his dreams were
embraced, he was driven
by a higher calling.
This is Richard Branson, and
he's here to service you.
Every last one of you.
-That's one of the most amusing
things that took
place, was in my 50th year, I
had now created 300 companies.
We had the largest group
of public, private
companies in Europe.
And one of my directors took me
on one side at the end of a
board meeting and said, look,
Richard, erm, I have a feeling
that you don't know
the difference
between net and gross.
Please forgive me if
I'm being impolite.
And I admitted, hands up, that
I didn't know the difference
between net and gross.
So he quietly takes me out of
the boardroom, and he puts a
bit of paper down on--
on the table, and he
pencils in the sea.
And then he pencils in a net
coming out of the sea, and he
put some fish in the net, and
says, OK, so that's the profit
at the end of a year,
and there's the fish
that are in the net.
And this is your gross turnover,
the first that are
in the rest of the sea.
Wow, I got it.
I'd now got it.
So I didn't have to say, is
that good news or bad news
anymore when people
were giving me the
figures for that company.
-I've been very fortunate in
having an opportunity to try a
lot of very interesting
lawsuits.
United States Supreme Court,
"Bush v. Gore"
during the 2000 election.
The California law that
prohibited gay and lesbian
citizens from marrying.
Successfully defended CBS in
the case brought by General
William Westmoreland.
I can remember one time, I was
representing the Department of
Justice, suing Microsoft for
anti-trust violations.
I kept referring to "lo-jin,"
as opposed to "log in,"
because you saw the L-O-G-I-N,
and "lo-jin" seemed perfectly
logical to me.
And it took a couple of days
before people sort of got the
courage to tell me that I was
totally mispronouncing kind of
a key concept.
-My handwriting is comical.
I mean, doctors write
brilliantly, with clarity.
I have long said that.
You do not want to see it.
I mean, it's-- still to this
day, I'm always embarrassed to
write a note to people.
That's kind of only my friends,
and I get it typed up
by-- thank god I have
people helping me.
-When I was about 15, I decided
I'd had enough of
school and tried to put
the world right.
I went to see my headmaster.
I told him I was going
to leave school.
And he then said, you're either
going to go to prison
our you're going to become
a billionaire.
-I always thought artists
had a different
way of solving things.
And I thought that was a pretty
cool thing to do.
So it inspired me to see, man,
if they can solve an issue
that way, why can't I solve some
issues in the business
world in a different way?
-I mean, these financial
services companies are still
talking about retirement like
it's some kind of dream.
A vineyard?
Gimme a break.
ANNOUNCER (OFFSCREEN):
Talk to Chuck.
CHARLES SCHWAB (OFFSCREEN):
I just sort of
said, no fuss, no muss.
Integrate all these
things together.
-The good thing about being a
dyslexic, if you're a business
person, is that you simplify
everything.
If we launch a new financial
service company, we won't use
phrases like, you know,
"bid-offer spread," because I
have no idea what the
hell it means.
You know, we say what we mean,
which is important, and I
think that means that
the public trusts
us more as a result.
-One of the things that I
learned growing up was to
listen well and to talk
without notes.
Because I couldn't
read the notes.
And it wasn't because I thought
this was a good idea.
It was because I didn't
have any choice.
But as you older, what you find
is the ability to listen
and to talk extemporaneously.
It can be very valuable.
-One of the things you'll learn,
being dyslexic, is
you've got to learn to suck it
up, because you're going to
fail, and you're going
to fail often.
And you've got to start to
appreciate that, as they say,
that failure is a portal
of discovery.
Mistakes are a portal
of discovery.
The most successful people I
know are the ones that screwed
up the most, learned from their
mistakes, and moved
forward and got up.
-I think that dyslexia is
positively correlated with
creativity.
-When people are working hard
on a particular thing, and
they're thinking about three or
four different ways to get
to the solution, I invariably
say, you know,
I think I got it.
This is where we want to be.
And other people are more
sequential in their thinking.
I intuitively sort of get there,
generally speaking,
much more quickly.
And the ability to see the
entire picture and step back
from it, and not just learn,
but think, I think the
dyslexia teaches that,
in a sense.
Because learning is hard,
it forces you to
align more on thinking.
And as you get out into the
world, it's thinking that is a
lot more prized than learning.
DYLAN (OFFSCREEN): Finally, you
know, I got a phone call
in the middle of class saying,
you know, you've been taken
off the waiting list.
I don't know.
Of course I'm a little
bit nervous about it.
And especially, I feel like also
with Middlebury, too, I
mean, I'm probably the
only kid that got,
you know, the lowest--
I'm probably the lowest
SAT-taker within the entire
population of Middlebury.
And-- and I think this means--
I had this feeling of
sort of taking a
risk on me as a student.
Like, I have a feeling that the
teacher's like, well, he
has dyslexia, you know.
So maybe, maybe this
is true, but let's
just see how he does.
And then if he does well, then
this means that kids with
dyslexia can do well in this
sort of intense academic
environment.
So I almost feel, like, an
obligation that I have to do
well so that other kids with
dyslexia can feel comfortable
in this environment.
Scary, but I'm excited for it.
DR. SALLY SHAYWITZ (OFFSCREEN):
Knowing what we
now know about dyslexia,
you can be the smartest
person in the world.
You can even be a Nobel
Prize-winner.
You can be very motivated and
try so hard, but you still
won't read quickly.
So what you do about that?
You give the person what's
called an accommodation.
That is not giving
you answers.
You just allow them a little
more extra time to read.
-My main problem in taking
tests is that I read the
problem wrong.
It's usually exhausting, going
into your mind when you're
trying to find a word.
The problem's probably not
going to be right.
Mix up these words.
For the rest of the test.
How long is going to take?
[interposing voices]
Time.
Time.
Time.
[boom]
-People who are dyslexic would
prefer not to need extra time.
They don't like to read.
And they would rather not sit
for an extra hour or an extra
15 minutes or whatever it is.
Dyslexia robs a person
of time.
Having accommodations
returns it.
We've learned that if you're
not dyslexic and you have
extra time, you might get
a few extra points.
Or because you have more time
you need, you might go down,
because you'll change a good
answer to a bad answer.
So the only people who actually
go up substantially
are people who are dyslexic.
-Think of any suit.
SHEREE (OFFSCREEN): I think
the one thing that really
annoys me is when people
say, he's so smart.
He's doing better
than other kids.
You know, like challenging the
idea that he's dyslexic.
If he's doing a B+ but he can
do an A+, then he should be
supported so that he can do the
A+, because that's within
his capacity.
People struggle with that
notion, because they think
he's getting a leg up, whereas
it's actually evening the
playing field.
DAVID BOIES (OFFSCREEN): Life
is not a timed test.
What matters is how well
you do the job.
And very rarely does it really
matter whether you do it in 55
minutes or 75 minutes.
People who don't understand
dyslexia say things like,
well, extra time on
tests is going to
give an unfair advantage.
Those are people who have such
a narrow view of testing that
they think that what you really
are trying to find out
is how many things have people
memorized, and how
fast can they read?
Those are just proxies.
What you really want to know
is how successful is this
person going to be in really
thinking and developing and
creating things?
Those are the kinds of things
that are really important.
And so when people talk about
fighting extra time for people
with dyslexia, they just don't
understand what the
process of life is.
-Um, let me do the end.
And see, it's not
just swimming.
It's water polo, field hockey,
you know, you name it.
I think along the way, when
things were difficult for her,
she's a very talented athlete.
She'd often say to me, well, I
may not have done well on that
test, but nobody in my class
can swim 50 breaststroke as
quickly as I can.
And that's gave her some
confidence in other areas, and
discipline.
And I saw that discipline
transfer to her work habits in
school that took time
to develop.
ALLISON (OFFSCREEN): No one ever
gave me a packet on what
to do or the best way to
learn, or if you're not
learning this way, you should go
back and do it another way.
But one of the things that I've
learned in particular is
that I need flashcards.
I'm not one of those people who
can just breeze through
things and memorize a sheet.
So I made tons and tons of
flashcards for everything.
Boxes of flashcards.
I might look really silly.
People may laugh at me.
But end of the day, I'm going to
do well on the test because
I have, you know, 500 flashcards
sitting on my desk.
-I realized the only way
I can read is if I
underline or highlight.
And then I'll take what I've
read after I've highlighted or
underlined and I'll basically
do my own
"Cliff Note" versions.
I have all these binders in my
house of books I've read over
the years, my own "Cliff
Note" versions.
-I had a lot of my books on
tape, because it allowed me to
understand the story and what
the author was trying to say
without being caught up
between the wordplay.
-I would always take notes,
and then I would
take notes of my notes.
And I just kept boiling it down
until I knew it by heart.
-If you're having a meeting, and
sort of eight or ten ideas
come out of that meeting, if
you don't write it down,
you're only going to remember
one or two.
And the rest will go disappear
on the wind.
So I will write lists of
everything that's been said.
That has been invaluable in
building the Virgin empire.
-Today, when I read, I almost go
through in my mind, as I'm
reading the word, almost
spelling it out to myself as
if I were to type
on the computer.
And I sometimes even tap it
out with my feet as if I'm
playing a keyboard
with my toes.
-There you go.
-Thank you.
Have a nice day.
TYLER (OFFSCREEN): Finally, my
wife and I both thought that
the best thing for our daughter
would be to take her
out of her school.
And we got her enrolled into a
school which specializes for
kids with dyslexia.
GERALYN (OFFSCREEN): While it
was very difficult to put her
in a special school, I
think ultimately, it
was the biggest gift.
Skye always says that Windward
taught her how
to crack the code.
And the way she talks about
her dyslexia is Mommy, I
cracked the code.
TYLER (OFFSCREEN): She shined
in that school.
And within a few months of
being there, she had that
curiosity again and that
desire to learn.
-I look at where Skye is now
in her mainstream school,
which is so rigorous, and I
think that being in that real
situation gave her
such a jumpstart.
She's really stepped up to
the academic challenge.
SKYE (OFFSCREEN): When I was,
like, eight, I would always
do, like, li-brar-y
to help me spell.
-I do that sometimes.
-Overall, sixth grade has
been a little different.
When someone called me mentally
retarded because I
can't read or because
I have dyslexia.
And you know, I didn't really
find it offensive.
I just found it actually funny
that someone would even say
that as a comeback.
You know, maybe if I was
younger, like if I was six
again, I would have, like,
gotten really upset.
But now I just find it funny
that people would even try
and, like, make a
joke out of it.
COACH (OFFSCREEN): Five
six, seven, eight.
Karate chop, one, and two.
SKYE (OFFSCREEN): I love
dance so much.
Especially I love competition,
because when I'm on the stage,
I think about all the drama
I've had this year.
You know, some of my classes, I
haven't been doing well in.
And I just dance all
my feelings out.
[playing notes on piano]
TYLER (OFFSCREEN): It brings me
incredible joy just to see
her perform and not hide herself
the way I hid myself
when I was her age.
-And why was her accomplishment
so important?
Skye?
-Um, well, Jessica Watson,
she sailed.
-Skye will be able to do what
she has her heart set on.
ALLISON (OFFSCREEN): And that
kind of kept me going, even
though, you know, it might have
taken me longer to read a
book or read a poem,
I just really loved
learning and reading.
I've really tried to become good
at things that someone
once said that I couldn't do.
KAREN (OFFSCREEN): I told the
person who had done Allison's
testing in fifth grade--
she lives in our town, and I ran
into her and said, guess
where Allison is?
Oh, she just graduated
University of Chicago, double
major in history
and philosophy.
I think the woman, like, you
know, practically fell over.
They were saying she
can't do music.
She shouldn't take a
foreign language.
It made it sound like her life
would be limited in some way.
And what I've been so overjoyed
and sort of letting
the breath out is to see
she got into her
first-choice college.
She gets the job she wanted.
She just takes a
little longer.
And whether it's working on
her-- as a reporter and
putting in the extra hours, and
not meeting the people at
the bar to get the good story
or write her thesis, she's
willing to do that.
ALLISON (OFFSCREEN): I
finished my thesis.
In the comments that I got back,
one of my professors
laid out everything.
You set the bar at trying
to explain this really
complicated historical
process.
It's a very original idea.
And bravo, you accomplished
it.
After I finished, it was just
this moment of, like, wow, I
just wrote a 74-page document,
and, like, I'm
still ready to go.
You know, like, what's next?
DYLAN (OFFSCREEN): I had no idea
if I was going to be able
to do it or not.
But once I got to Middlebury,
it was actually really
interesting.
They have this counselor who's
part of the CTLR, this, like,
center for something having to
do with, like, learning, and--
I don't know what the
abbreviation's actually for.
But I went and talked to this
woman there, and she said
something really interesting
thing.
She's like, well, Middlebury
accepted over, like, you know,
like 30 or 40 kids with learning
disabilities this
year in the class, so you're
definitely not alone in
dealing with this situation.
And it was really great, because
I realize that they
have kids with dyslexia.
They know exactly how
to deal with it.
They only allowed me one
semester's worth of
accommodations because by
government things or something
like that, I have to have
an updated evaluation.
You know, it has to be done.
-Have you been to the
center before?
-No.
I've never even been
to New Haven.
So this is-- this is all
a new experience.
-This is it.
DYLAN (OFFSCREEN): The purpose
of all this retesting, I'm
kind of confused about.
Because they asked that I come
and get retested here.
But I'm--
from where I'm concerned,
it's not something that
just sort goes away.
DR. SALLY SHAYWITZ (OFFSCREEN):
You are correct.
There is no reason.
If we're dealing in in a world
of science and reason, there's
absolutely no reason
to be retested.
And if we've learned one thing,
it's that dyslexia
doesn't go away.
There's always going
to be challenges.
-Yeah.
-But what--
what I would hope would happen
with society is the artificial
barriers would fall.
The slow reading will
always be there.
I don't think you're ever going
to be a great speller.
-Nope.
-And I don't know what you're
handwriting's like, but I
don't think--
-Not great.
-I don't think--
but so what?
Dyslexia is basically
a paradox.
I like to describe it as an
island of a weakness in
getting to the sounds of words,
but surrounded by a sea
of strength in critical
thinking, in problem-solving,
in reasoning--
the kind of things you can't
teach, but it's really good if
you have them.
And people who are dyslexic
really have them.
-Every achievement that I make,
it's like, OK, well, I
was able to do that.
Let's see if I can just
go for this, too.
I was really prepared for him
to struggle when he hit his
college environment.
And the first semester, I was
really relieved to hear that
he was not only surviving,
but thriving.
But it was when he called me
to tell me that he had made
honors in his first year of
college, I literally had to
sit down on a bench, and
I started to cry.
And then I was really scared
that he was going to be able
to tell that it had moved me.
Because I wanted him to know
that I had faith in him beyond
these external measures.
He said to me, I know,
Mom, I'm on a list.
And I paused, and he said, you
know, it's good to be on a
list, especially for all those
people who believed in me and
who took a chance on me,
and now I'm on a list.
I maybe had ditched the academic
super-stardom plans
for him, but he hasn't ditched
them for himself.
KAREN (OFFSCREEN): In our
family, we kind of laugh and
say, oh, we care about
the effort.
We don't care about the grade.
Because I know that
this is an arc.
School is an arc.
And life is a long time, and how
you're performing in Mrs.
Livowitz's fourth grade is
actually a really small piece
of your life.
And I think it's important for
parents to keep their eye on
the big picture.
DAVID BOIES (OFFSCREEN): One of
the ironies of dyslexia is
the further along you get,
the easier it becomes.
It's the willingness to
continue, the patience to
continue, the perseverance,
that is critical
when you have dyslexia.
-Even if you feel uncomfortable
doing it, you
have to push yourself to
do whatever it takes.
-The biggest mistake that
someone could make
is think that I'm--
the only way I can get through
this is pretend like I don't
have dyslexia, and just
have to work so
hard to become normal.
That's just impossible,
because, like,
your brain is different.
But it doesn't mean that you
can't still do the things that
you want to do.
It's so important
to just own it.
Just totally own it.
DR. SALLY SHAYWITZ (OFFSCREEN):
So that means
there are 10 million in the
US who are dyslexic.
Every class has children who
are struggling readers.
And if we can get all the people
who care about dyslexia
to come forward and joint the
community of people who care
and want to change society's
perceptions, we could actually
make promise.
DR. TOBY "DELOS" COSGROVE
(OFFSCREEN): I think the only
reason I got into medical
school was
because I had an interview.
The fact that they've, at a very
early age, have gone over
a lot of hurdles, and they've
overcome them.
And so for admissions people,
you've already realized that
you have got kids who
are persistent.
And that persistence will take
you through a tremendous
number of things.
CHARLES SCHWAB (OFFSCREEN):
One in five kids
are born with it.
Comes through their DNA.
Most don't get attention.
Most go through life never
knowing, never
achieving their potential.
SKYE (OFFSCREEN): I know I will
do something that makes a
difference in this world,
whether it's finding a way to
clean the water in Africa
or discovering
a new cure to cancer--
who knows?
I can do anything.
[music playing]
-I'm Chuck Schwab.
I'm a lifelong person who
suffers from dyslexia.
-I'm David Boies, and
I'm dyslexic.
-I'm Gavin Newsom,
and I'm dyslexic.
-I'm Allison Schwartz,
and I'm dyslexic.
-I am who I am.
-My name is Leilani,
and I am dyslexic.
-My name is Jason,
and I'm dyslexic.
-Hi, my name is Georgia,
and I'm dyslexic.
-I'm Camille, and
I'm dyslexic.
Hi, I'm Jonathan, and
I'm dyslexic.
-Hi, I'm Olivia, and
I'm dyslexic.
Hi, my name is Bethany,
and I am dyslexic.
-I'm Melinda, and
I have dyslexia.
-Hi, I'm Becky, and
I have dyslexia.
-Hi, my name is [inaudible],
and I have dyslexia.
[music playing]
[music playing]