Embracing Dyslexia (2013) - full transcript
According to the National Institutes of Health, dyslexia is a specific learning disability that is neurological in origin. Individuals with dyslexia have trouble with reading, writing, spelling and often with math despite having at least an average intelligence. It is estimated that 15 to 20 percent of the world's population is dyslexic but most are never identified or diagnosed. For those who are diagnosed it often happens after years of struggling in school, after self-esteem has begun to tumble and after the words 'I'm stupid' or 'I'm dumb' become more than just words. In 2008 filmmaker Luis Macias learned that his eight year old son, Alejandro, was dyslexic. Even though Alejandro was diagnosed relatively early, it came after he was held back in first grade due to his poor reading and writing skills and it came after countless homework battles, self-esteem issues, and Alejandro continuously being told that he was not trying hard enough. We know how to fix the reading, writing, and spelling issues that dyslexics struggle with. Dyslexic children can become successful readers and very successful students thus allowing them to reach their full potential as adults. But there is a tremendous roadblock in the way and it is there because our governments, schools and educators are simply misinformed about what dyslexia is or they have no information at all. By carefully weaving together interviews with parents, educators, researchers, experts, and adult dyslexics, Embracing Dyslexia tackles the issues surrounding dyslexia like no other documentary film. Parents share emotional stories of their anxiety and frustration over failing to understand why their children were struggling with reading, writing, and spelling and the the life-altering impact the word dyslexia had on their lives. Adult dyslexics courageously open up and speak candidly about their dyslexia, sharing their struggles and successes they have had in school and in their adult lives. Experts and educators define what dyslexia is and illustrate why early dyslexia screening for all children is vital. They also share how effective tutoring inside and/or outside the school, accommodations in the classroom, and recognizing and fostering the dyslexic child's natural gifts and abilities can take them from feeling stupid and experiencing failure on a daily basis to believing in themselves and knowing that they can be as successful as their peers. For being the most common learning disability, dyslexia is grossly misunderstood in the one environment where it can least afford to be - our schools. Embracing Dyslexia sets out to change this by enlightening and inspiring those who are responsible for the education of these amazing children.
a woman fell from a boat
into the ocean.
No one saw her fall.
The wa-- the waves were rough.
-Soon she glue--
grew-- glue tight.
Then something
bumped against her.
"A shark" she thought. "Oh, no!"
It was not a shark.
It was a dolphin.
Grint-- grinit-- grinily, it
pushed her towards the shore.
Water-- shallow water at last.
The-- she care-- ca-- cake--
cleared up-- cleared up.
Clare--
LUIS MACIAS (VOICEOVER):
This is my son Alejandro.
During first grade,
we transferred him
to a private school
near our house.
He was tested for
reading and math
and we were shocked to find out
that he was behind in reading.
In an effort to
help him catch up,
he met with the school's
resource teacher
and he met with a reading tutor.
Unfortunately, he was
still behind at the end
of first grade.
So, at the recommendation of
his teacher and the principal,
we held him back.
I will always
regret that decision
because it is something that
still haunts him to this day.
Halfway through second
grade, it was my mother
who suggested to us that we
have him tested for dyslexia.
We did and the results came back
that he was indeed dyslexic.
We went his school and told
the principal and his teacher
that he had been
diagnosed and that he
was going to need
accommodations.
And the schools actually
really good about that.
At this same meeting, I
remember asking the principal
about the best way of telling
Al that he was dyslexic.
And I remember the principal
telling us that she didn't want
to use the D word and
that labelling children is
a bad thing and we
shouldn't do it.
I thought that was a really
strange answer because here was
a child who was struggling
and he knew he was struggling.
I felt that we should
tell him and we
should help him understand
what dyslexia is
and what it means for him.
So we did.
Since then, [INAUDIBLE]
confidence has soared.
And with the help of the
school's resource teacher,
in now a private
dyslexia tutor, he
has become a much
stronger reader
and continues to improve.
Learning about dyslexia
and embracing it
has changed our
lives for the better.
MAUREEN O'CONNOR
(VOICEOVER): Dyslexia
is a neurologically
based disability.
It affects the
ability of the child
to, or the person to
acquire written language.
-It's very heredity-- hereditary
and it's-- it's generally
if there's a father who
is dyslexic or a mother,
one of their children
is going to be,
it's going to be dyslexia.
Sometimes even, it won't
affect the mother and father
but when you, when you talk to
find out, well, there's an aunt
or there's an uncle
or there's somebody
in-- in their family who has
had a similar, a similar problem
with acquiring a
written language.
It can be unexpected and
that the child appears
to be very bright, which
dyslexic children are
very bright.
And in many cases, the
high cognitive ability
can almost work against them.
They're compensating so much.
And people don't realize that
they're really struggling.
And so, they may go on and
perhaps do average work.
But maybe they were meant
to do more than that.
You know, maybe they were
meant to do above average work
and they were meant to be
super, super successful students
and they never get their chance
because the right tools were
not there to find
out what was really
going-- going on with them.
-Um, before Kendall was
diagnosed with dyslexia,
she was frustrated.
I was frustrated.
It was very difficult.
I assumed she was
being stubborn.
KAREN HOPE (VOICEOVER):
It was very hard on her
when it came time to read
because the teachers kept
telling me "you need to
spend more time with her,
spend more time with her."
And I felt like we were
adequately spending the time
she needed to learn how to read.
She just couldn't pronounce
the words, follow the story,
she didn't know how to read.
-Early on in Logan's
school career,
I would say as
early as preschool,
we noticed struggles.
Struggles learning is
letters, his numbers,
retaining that information
is in his head.
LEANN HARBAUGH (VOICEOVER): When
we would talk to the teachers,
almost always, we would hear
that he's not reading at grade
level, that he's struggling
with his spelling.
We would also get some
reports about behavior issues
because he was struggling and
sometimes he would just give up
and then there's nothing
to do in the classroom,
because you don't understand
what you're reading,
a second grader, if
they're [? greater ?],
can become a behavior problem.
-Jessica was in third
grade when we kind of
hit a wall here at
home with homework.
She had been fine up until
then and-- and then it
came to a point
where she would just
get frustrated
almost immediately.
LINDA PUPICH (VOICEOVER):
She would spend hours just
doing simple things
that were sent home.
And there were like tears, a lot
of late nights, a lot of fits.
We slowly started to see her
self-confidence just tank.
I mean, it just went
down, and down, and down.
She started to
feel really stupid
and didn't want to go to
school and it was a hard time.
-I noticed that Lauren
was having difficulties
between kindergarten
and then first grade.
Actually in kindergarten,
her teacher approached us
toward the end of the
school year and said,
"I think that Lauren needs
some extra help with reading."
LISA KURYLA
(VOICEOVER): She's not
grasping some of the concepts.
She had difficulty
decoding words.
She would recognize
the word and then not
be able to say it
again 10 seconds later.
And that was when I noticed
that were-- were some issues.
-Before Cole was diagnosed
with dyslexia, doing homework
was a very stressful time of the
day, both for us and for him.
Part of it is because we didn't
know what his troubles were.
DAN MCDERMOTT (VOICEOVER):
We didn't understand it.
DEE MCDERMOTT (VOICEOVER): I
had heard from his teachers
that, you know, he
was being lazy, not
wanting to do his work.
So that's what I thought it was.
And in reality, he
wasn't grasping it.
So it was frustrating
for both of us.
As a parent, I just I thought
he could do better, you know.
And because I was listening
to them telling me
he was lazy, so.
-It was just very frustrating.
And I remember him crying
and then I would cry
and then it just
became horrible.
So it was not a good
time at all for us.
CORNELL AMERSON
(VOICEOVER): First grade
was much like kindergarten,
you know with color and playing
with the toy and all that.
-And I remember sitting at
the table in the classroom.
You know that's the way the
teacher had everything set up.
And we can play with
the toys instead,
but you had to
finish your homework
assignment, usually
classroom assignments.
And I'm sitting here,
trying to figure out,
well I don't get it, I don't
understand it, you know.
I'm looking at these words
'cause at that particular time,
I didn't know how to read.
I don't know if
you're suppose to know
how to read in the first grade.
I knew I didn't know how
to read in first grade.
So by the time I
got to second grade,
it was-- I was just there, just
looking at um this book and all
these words and supposed
to know this stuff.
CORNELL AMERSON (VOICEOVER):
And because I didn't, I
didn't pass.
I failed, in fact,
they held me back.
Then um the rest of
it is pretty much
a blur some what but I kind of
figured out that I wasn't going
to get this and this is as
far as I was going to go.
So what I did was learned
how to be quiet, try
to be as invisible
as possible, you
know I'm saying
because you don't want
to draw any attention
to yourself.
And I was aware that the
other kids was getting it.
I wasn't.
And so drawing is
what I pretty much
start doing to keep my-- I mean
other then just being feeling
like part of furniture,
giving myself something
to do while sitting I was there.
I knew there was a problem but
it seem like nobody around me
seem to respond to it, you know.
My mother was trying to be
supportive of my circumstances
because she knew something
wasn't quite right.
And I do remember her buying
like um, um paper and pencils
and would sit me
down and try to work
with me and all
this kind of stuff.
But my father, his
thing was, he just
plainly-- he said I
was stupid and dumb
and never amount to
anything because he was
in agreement with the
teachers and stuff.
So, you know, he made
matters a little,
he made it a lot worse
than it should've been.
Presently, I'm
suffering from that.
I'm paying a great cause
because I'm shy of everything
because at 49, I have
no formal education.
Never been to high school.
Uh, never been to college.
My schooling stopped at,
to me, in the second grade,
as far as I'm concerned.
I think that's where
it all stopped,
to be perfectly honest.
When I failed, somebody
should've did something.
When I was um grade school, I
had always wanted to actually
be a pilot because I
love airplanes, you know,
then and now.
But as time went
on with my drawing,
I started realizing I was
more interested in designing
aircraft, more so than
flying an aircraft.
So now, I'm to the
point where I want
to get into
designing spacecraft.
But unfortunately, due
to my circumstances,
it's just-- that's just
a dead dream right now.
And I hate that.
I really hate that.
MARK HARBAUGH (VOICEOVER): Uh,
school for me was not easy.
It had various different
levels of failure,
had various different
levels of success.
Especially in my
elementary days,
I definitely had the
teachers that saw me as lazy,
wasn't trying.
And I had the teachers
that, you know,
just viewed it as, oh,
he'll get it some day.
And in high school, I was
definitely a C student.
-I mean, the only thing
I got an A in was Gym.
And I was happy that
it was my one A.
And-- but although I
liked history so I would
do fairly well in history.
But English and Math, uh
any of that stuff was big
struggles for me.
Um, when I took my ACT for the
first time to get into college,
I think I scored a 13 on
it, which wasn't great.
But then somehow through
the resource in high school,
I got to take the ACT again
and I scored a 19 on it.
And that time, it was read to
me and it was also non-timed.
I still remember to this day,
sitting with my high school
adviser, as you're getting ready
to start looking at colleges,
and he said, You should
stop thinking about college.
Start looking into
trade schools.
And you know it's
probably the path
that you're going
to end up in life."
And I walked out-- um, I walked
out of that situation feeling
OK, you can accept that
or you can change it.
And the way you're
going to change it
is um by not giving
up, you know.
It's easy to throw in the
towel and say, OK I'm dumb,
I'm stupid.
This is your lot in life.
But I knew I wasn't dumb,
I knew I wasn't stupid.
I had value, I had
a lot to offer.
Um, I found myself.
I'm-- I was very social.
I was very creative.
I didn't have problems
speaking in public,
so you know, to
me that piece was
the part that I was
going to go for.
Um, so then when
I went to college,
I knew that I had
to find a school
that was not the
big mega school.
If I had a big mega school,
I would have been lost.
So I found a smaller school.
I went to Bradley University.
The classroom sizes was smaller.
It was only about 4,000
students on campus.
The teachers were
actually, the classes
were actually taught by the
professors, first as a TA.
Average class size
was 25 to 30 kids.
So it was almost like
going to high school
but you had more independence.
I mean I knew my professors
and I would go to my professors
and they would work with me.
So that to me was huge.
And again, I had to take
the philosophy-- and I
joke about it today to my
kids, I said Cs get degrees.
Because that's
what I had to get.
I add to get Cs.
I get Bs every once in awhile.
But at the end of the
day, I got a degree.
And I'm happy for that.
HOLLY YORK (VOICEOVER): Some of
the common myths about dyslexia
fall under common questions
and common characteristics
of dyslexia.
-For example, reversals.
Many people think that
individuals with dyslexia
see things backwards.
When in fact, that is a myth.
They don't see things backwards.
It's actually a
neurologically-- a
neurological issue
within the brain.
Another myth is that
dyslexia is rare.
And in fact,
dyslexia is not rare.
One out of five people have
dyslexia and most of them
will go undiagnosed their
whole life and will struggle.
-Some of the myths is that
it's a vision problem.
And it's not a vision problem.
It cannot be corrected by
colored lenses or overlays.
It cannot be corrective by
any kind of vision therapy.
Efficient therapy does collect a
problem that it's not dyslexia.
There's a common misconception
that it's a hearing problem
or auditory processing
problem, which
is different than
phonological processing.
-Another thing people believe
is that dyslexics cannot read.
That is absolutely not true.
Dyslexics can read,
up to a point.
But around third
grade, if not sooner,
they hit the wall in
reading development.
Another myth is
that people believes
dyslexics will never read well.
In fact, dyslexics can
become excellent readers,
great spellers,
wonderful writers
if they are given the
proper intervention.
-Often times, I'm told,
"Well, that's just
kind of a junk term.
It doesn't mean
anything anymore."
I even recently had a parent
that took their child's
results, after being diagnosed
with dyslexia to the principal,
and the principal said,
"It does not exist.
There's no such
thing as dyslexia."
-Some of the
comments, the stories
that we get from parents--
you, you're not sure
if you want to laugh or
you want to cry about them.
Because they're just,
they don't make any sense.
We'll have a parent
say you know,
"My child's in third
grade and he's not reading
but the teachers telling me that
he's not trying hard enough."
Or "he's just a little slow."
Or "he'll grow into it."
-You know, I had one parent tell
me, who is from a very affluent
school district, when her
child was in first grade,
that the teacher said to them or
might have been administrator,
that not everybody's
child can be smart.
And somebody has to stock
the shelves at Walmart.
How do you tell that
to a first grader?
How do you sell them
that short that early?
-If I could do anything for
the children and individuals
with dyslexia, it is to
root out this insidious myth
that children who can't learn
to read are dumb or are stupid
or not working to potential.
What I want everyone to
understand that there is
reading and there
is intelligence.
And the reading circuit
is about putting together
all these parts with a
child's intelligence.
The intelligence of a
child is not shown by
whether they can
learn to read or not.
And it is an assumption that
is shared by so many people
and makes children who can't
learn to read feel stupid.
STEWART HUDSON
(VOICEOVER): So we
have a big problem in
American education.
The problem many of us
are trying to work on
in this field that affects
anywhere from 2.5 million to 10
million school kids,
we're not allowed
to name when we're working
with kids in schools, dyslexia.
-But what I think is
important about labeling
is the context matters.
Labeling is not always bad,
neither is it always good.
And it can be disabling if
what you're saying to a child
is that dyslexia is a
litany of deficiency,
a list of things
you ain't good at.
Doesn't have to be that way.
But we have a duty.
We, who are adults, have a
duty to change perceptions
so that people understand
the talents that go along
with dyslexia and
those who have it
and the way their
brains operate.
It's a package of strengths
and some areas of challenge.
More to the school
system, however,
is labeling is sometimes
relieving to a child
and that's true whether
it's a mental health
issue or a learning
issue or a health
issue that's beyond a
mental health issue.
People need to get a
hand hold on something
in order to know
it's not about them.
That whatever they're
contending with it,
it might be a challenge,
is not a character flaw.
-I know that people don't like
to refer to the word dyslexia.
Administrators, teachers,
even parents, perhaps,
don't want to acknowledge
that that's it.
Or say the word or address it.
But all I can say for
a parents prospective
is we saw our son hit a wall.
Emotionally, we were
frightened for him
because he was shutting
down on every level, felt
so frustrated, felt so
unworthy really, and incapable.
And that word dyslexia
changed everything for him.
It gave a reason for why he
struggled so much so that he
wanted to do his end of
the year fifth grade report
and presentation on dyslexia,
presented it to his classroom,
felt empowered like
this is why I struggle.
There's actually a word for
it, there's a reason for it,
I'm not stupid, I'm not lazy.
I work hard, probably
harder than most of you
have to work for
maybe a lesser grade.
But this is why.
And so that word gave
him purpose and meaning
and it really did change
everything for him.
We were able to point to
other people, professionals,
inventors, presidents,
lots of people
in powerful positions
who had dyslexia, too.
And it-- it allowed him to
believe in himself again.
Like, oh, I can do it, too.
And I can excel at
other things and I
can be-- I can be successful.
-Well after the diagnosis,
we reviewed the material,
my husband and I with the
physician that diagnosed her.
We had some interest--
you know, a list of things
that we could do
to help Kendall.
We brought information
back to her teachers
and to the principal
and we spoke with them.
The teacher still did not quite
understand what dyslexia was.
That was kind of difficult.
She tried, I mean, she
tried to figure, you know,
try to help us and
figure out what that
was but the
understanding is it's not
there yet quite
in the community.
I mean, she didn't
grasp the concept
that this wasn't something that
she was just going to outgrow.
Now talking with Kendall,
she was a little bit more
disappointed and devastated.
She didn't quite understand it.
You know, "I'm just
like everybody else."
She didn't want to go
to resource classes.
She didn't want to do the things
that you needed to progress
with her reading and with for
understanding and how to learn.
And then once we sat
down on several occasions
and we went through the
different information with her,
one day she was like, wow,
mommy this is working.
You know she'd sit down
and do her homework
and she wasn't as
frustrated, there
wasn't as much crying, you
know, more temper tantrums.
And I think she's understanding
that you know, this is OK.
This is you know, this is OK.
This is who I am and
I'm special and I'm
going to use what I have
and it's not a bad thing.
-Personally, I think Cole
when he was first diagnosed,
he was very embarrassed about
the fact that he had dyslexia.
He was always saying,
"Why do I have this?"
You know "How come
I get everything?"
And it wasn't until I
sat him down one day,
because he was getting
teased at school,
that I suggested his tutor
come into his classroom
and talk to the kids
because he doesn't have
a physical disability
that they see.
DEE MCDERMOTT (VOICEOVER):
And ever since then, Cole's
become more proud of the
fact that he has dyslexia
and it's not such a
curse to him anymore.
MAUREEN O'CONNOR (VOICEOVER):
Most public schools give
a standard battery of tests that
has three reading tests on it.
It has a test of comprehension,
a test of vocabulary,
and a decoding test.
-And that's it.
Some have a fluency test.
Um and so they take those,
they average them together
and then they tell you,
well what you know,
what the average is
and where your child
lives on that on
a standard scale.
But you need to know more about
a child's reading than that.
You need to have a
good decoding survey,
you have to know where is
the breakdown in the reading,
you know?
Where, where is it happening?
Is it happening at
the decoding level?
Is it happening at the
comprehension level?
Is it happening at the word
level with, with vocabulary?
And you don't get that from
a regular public school
evaluation.
-When a parent thinks that
their child might have dyslexia
and they're looking to
find somebody to test them,
to determine whether or
not that is their problem,
they need to make sure that they
are looking for a person who
is qualified to test
their child with dyslexia.
So that person needs to have
a real understanding of what
dyslexia is, they need to ask
them for what types of tests
they're going to be using.
And there are lists of
tests that are accepted
in the dyslexia community as
having the ability to determine
whether or not somebody
has to dyslexia.
They need you to
believe in dyslexia
and that it's-- that it's real.
And be able to use the
term in their reports,
that they give them a really
nice long report that shows
them what their
scores are and how
that, that backs
up their diagnosis.
So it needs to be
very detailed and it
needs to be explained
in the parent in the way
that they understand.
And they need to have the
educational level that would
qualify them to be
able to do that.
-For parents who are just
getting the knowledge,
the information that their
child is being diagnosed
with dyslexia, it
can be very scary.
And I believe it's scary
because they don't understand
or they don't have
enough information.
And I think it's important
that they take a deep breath
and make a commitment
to do some research
and read the good books
that are out there.
It's not a death
sentence at all.
And the more
information they have,
um the better they're
going to feel.
And the exciting part is
with that information,
they're going to be able to
help your child learn to read.
And that's the goal.
It's the parent, I
believe, that is so afraid
that they keep their
eyes shut and they
don't get the information
they need so they can't
parent that child and
advocate for that child.
And then the child
struggles to learn to read.
And we want to get past that.
We want the child to learn
to read and then become
the whole human being that
the child wants to be.
LISA STANKUS (VOICEOVER):
A dyslexic person
primarily needs two things.
They need Orton
Gillingham tutoring
and they need accommodations.
And those are the two
things to fight for.
Now, you might and
most likely will
have to go and seek elsewhere,
outside of the school
to get the Orton
Gillingham tutoring.
But that is critical
and it is attainable.
It is something you can provide.
And so you, as a
parent, have to weigh.
Am I going to wait
for the school
to catch up and figure this out?
Or am I going to take
the bull by the horns
and seek the help that
I know my child needs,
that I know is successful,
research-based, scientifically
proven, and most
supportive for my child?
I just got to do it.
-I've used Orton Gillingham
for probably 25 years
and it's just a
successful program.
I think it's successful
because it is so structured.
You don't leave room for error.
You teach every letter,
you teach every sound.
Um, you don't go on
until the child knows
what has been previously taught.
You're always
building on success.
I think the
multi-sensory part of it
is one of the most
important parts.
The child hears it, they
see it, they feel it.
-There are several Orton
Gillingham-based programs
tutors may use to teach
dyslexics to read.
It is really, really important
that the tutor is well-trained
and certified in the program
in which they'll be using.
As a tutor, I have
seen firsthand
the impact tutoring
can have on a child.
When they start with me,
they're an emotional mass,
they're very low self-esteem,
failing in school.
After their proper
intervention and hard work,
they have become
successful students,
their confidence
is growing and they
have got to the point where
they actually enjoy reading.
-Actually last summer, after
Logan had been tutoring
for about a year
and a half, he read
two novels over the summer.
Just so unusual.
Come up into his bedroom
and he'd be reading a book.
And so that was amazing.
Um we have noticed and even
the standardized tests scores
that just came home
this summer, what
an improvement his
were over last year.
So we know, we now.
I can see his
spelling improving.
I can see his writing.
And he still struggles
with getting LE thoughts
on paper and there
still other tools
that we use to help with that.
But we are definitely
seeing an improvement.
LEANN HARBAUGH (VOICEOVER):
And just his self-esteem,
that he's capable,
and able to do it,
has been really,
really neat to see.
LINDA PUPICH
(VOICEOVER): Every day,
I see a little light
coming in her face
when she does something,
spell something,
when she read something
that she wasn't
able to do before the tutoring.
And Alexia is in third grade,
her sister, and Alexia,
yelled down "How do
you spell whatever?"
-And Jess yelled
out how to spell it.
And I was like, oh, yay!
Hooray@ And um-- so I
see many celebrations
every day in her progress.
And it's so exciting to
me, to see her confidence
just build and build and build.
KAREN HOPE (VOICEOVER):
From the moment
she was diagnosed, until now,
where it's, what, two years
later, she's just
done phenomenally.
She actually had the
choice last year in school,
towards the halfway
through the school,
if you wanted to participate
in spelling tests.
And it was her choice
and she chose to do so.
And she did very well.
-Her Maths skills
went up greatly
and she's reading
and wanting to read.
She no longer, you know, comes
home and says "I hate reading.
I don't want to read ever."
KAREN HOPE (VOICEOVER):
She's asking
me to order certain
books for her.
You know, certain
books that she's
now interested
in, chapter books.
I mean that's a huge step for us
because she wants to know what
the next chapter's--
what's the next book about.
-So it's-- she's
excited about reading.
She's excited about school.
And for us, that's
just is a joy.
It's joy to see in her.
SUSAN BARTON (VOICEOVER):
Classroom accommodations are
essential for students with
dyslexia who have either not
gotten the right type of
intervention yet or it
hasn't-- may haven't had it long
enough that the gap is closed.
-Classroom accommodations
are something
the regular teacher
does to do two things.
One, to avoid accidentally
humiliating this child.
How do humiliate a
child with dyslexia?
You accidentally reveal their
weaknesses to their friends.
So things they shouldn't do,
ask them to read out in class,
make them participate
in a spelling bee,
have them come up to the
board and write the answers
to the homework where they'll
see his spelling issues
and his handwriting
issues and so on.
The most important
thing for a teacher
is to keep his
struggles private.
His academic struggles are
nobody else's business but his,
the parents, and the teacher's.
Nobody else should
be aware of it.
But there are other types of
accommodations that teachers
should also provide so that he
can access the same curriculum
as everyone else can
prove this knowledge,
even though we cannot
yet read, write,
and spell at grade level.
So for instance, he needs to
learn what's in the textbook
but he can't read what's
in the textbook, yet.
So allow him to listen
to his textbook on audio.
He knows the answer
to questions.
Trust me, he spent
hours, and hours,
and hours studying for tests.
But he can't write
down the answers
that he knows in
acceptable forms
so allow him to just
do oral testing.
If he does have to write answers
or essays, grade it on content
and ignore the spelling.
Simple, easy things
that costs no money.
They don't require
changing the curriculum.
They just require an
awareness by the teacher
that these are necessary.
And how to provide them
in a way that doesn't make
him look different.
CAROLYN COWEN (VOICEOVER): Early
intervention in the classroom,
even before they
get to the classroom
if you possibly can
do it, can really
make a big difference
in the outcomes.
-And the sooner, the
better because their brains
are more plastic
when they're younger.
The sooner, the better because
if they can-- if you can short
circuit that
failure cycle, which
carries lifelong
scars, all the better.
Outside the classroom,
it's also important.
They need all kinds of supports
that feed their self-image
because most of the
day in the school,
they're getting negative
messages about themselves.
So if there are things that can
be done that allow them to do--
to work on their strengths,
or do things that they enjoy,
positive support from the family
or activities, all of that
is really important because
it feeds their self-esteem.
And they have to have
a healthy sense of self
to do that fight, to do that
battle during the school day.
-Despite their
areas of struggle,
dyslexics tend to be gifted
in other areas, people skills.
They can make outstanding
teachers, politicians,
motivational speakers,
and community leaders.
They tend to have
amazing visual abilities.
This helps them to become
amazing artists, sculptures,
filmmakers,
hairdressers, architects.
Dyslexics can become
strong athletes
based on their intuition
and discipline skills.
And due to their
logical and hands-on way
of learning and
thinking, they can
excel in the scientific
areas, such as medicine,
engineering, and computers.
-They're not afraid
to take risks,
which is a wonderful quality.
It can be frustrating if you're
the parent of an eight-year-old
child who's jumping
out of trees or doing
things that are
seemingly impulsive.
But it's a great quality, if
you struggle with some things
but you pick yourself back up
and you say, "You know what?
I'm going to try it a
different way this time."
There are an estimated
35%, they say,
of entrepreneurs are dyslexic.
And an entrepreneur is
a risk taker, right?
It's somebody who sees
things differently.
We talk about the out-of-the-box
thinkers who might look
at something completely
differently than the average
person and come up with an idea
that no one else has thought
of, because of those
skills, those talents.
-I think it's
tremendously important
to foster the strengths if you
have a child with dyslexia.
I think that they spend a lot
of their early educational
experience in what
feels like failure.
And as parents and people
who know them intimately,
there's so much more than that.
And they might need
some convincing
in those early years.
DEBORAH LYNAM (VOICEOVER): So,
really celebrate and give them
many, many opportunities
to feel and experience
what success is like.
Because for many of our kids,
it can be the lifeline that
gets them through
the rough patches.
-Becoming an Illinois
Supreme Court Judge probably
is the results of my
entire life having someone
helping me along the
way and directing me.
For instance, when
I was a little girl,
I really didn't
do well in school.
Now I know why is because I
had dyslexia, have dyslexia.
But people would encouraged
me, "You know, you are doing
really well." it's
not-- it's OK.
My mom and dad
never really cared
whether I got As, I got Cs.
But what they did encourage
me to be was a happy kid.
ANNE BURKE (VOICEOVER):
Do what you like to do.
So off I went.
-I went to be a gym teacher
for the Chicago Park District.
Very successful.
I ran programs for several
hundred kids, day camps.
Started the Special Olympics in
1968 and was very successful.
I got married and
my husband encourage
me to go to law school.
He says "You know
all these things
about kids with disabilities.
You should be using
it to help them."
And I said, "But law school.
You know I could hardly
read, I can't spell."
He said "I'll help you."
So I did.
And it was-- I was successful.
I got Cs.
I only got one or two As
my whole law school career.
CAROLYN COWEN (VOICEOVER):
But I had that person
encouraging me about
what I could do.
JOE KURYLA (VOICEOVER): Some of
Lauren's strengths, creativity,
art, that's something that
we've been pretty happy about.
When she draws something
or paint something,
it's it's-- she
does a really nice
job with that kind of a thing.
She also has a really
good big picture
understanding of
things, it even Math.
She's not great at math but she
understands at a high level,
the concept, you know the
macro level of what's going on.
Getting the nuts and bolts
is kind of difficult for her
to put all of that
together but man, she
does understand what's going on.
Socially, she's a very
socially aware young girl.
-And she's very well liked by
I think everybody in her class.
Every, everyone in her school
really seems to like, really.
They hug her when they see her.
And then she seems
to really have
a great rapport with
just about everybody.
-I see dyslexia as
a gift, especially
in Jessica with her heart
for other struggling people.
And I think that
for her, um that's
grown a sense of compassion
in her and a love for people
that she might not have had
if she hadn't had to walk
through this journey the
way that she has already.
And um to me, that's
a gift because I
get the blessing of that,
as well bu her love.
But she's so good
with other people
and a couple weeks ago, she
told her tutor there one day she
might like to help kids that
are struggling like she is.
And it almost made
me cry because it's
just such a gift that she
could find a purpose in what
the world wants to say
is no good or a stigma
or stupid, that
she could find hope
in that and in a way to
make it a good thing.
STEWART HUDSON (VOICEOVER): We
need to be very mindful of not
making enemies of
those we need to be
part of changing
American education.
My sister's a school
teacher in Wyoming.
My sister-in-law is a
special education school
teacher in Pittsburgh,
Pennsylvania.
Around the Thanksgiving
dinner table,
I get in trouble talking
bad about teachers,
nor do I want to.
But if you remember the
phrase "Army Strong,"
I think we need to
come up with something
called "Teacher Strong."
And if you're going to
be "Teacher Strong,"
you are going to have to
endure that you are operating
in a very big system
that does not always
provide you the
rewards you deserve.
You're going to have to find
a way, as many teachers do
and I admire them for it,
to provide your own reward.
So remind yourself you're
there for the kids.
And to take some risk.
It's not easy and it is not
often rewarded by the system
but it is rewarded by what
teachers care about most,
and that is results
with the kids.
Now I want to be
clear, this means
high standards for teachers.
This means doing the things you
need to do in a system to take
those who are really
not motivated by doing
well and giving them
something else to do.
But for those who
are doing well,
find more and more ways of
celebrating their success.
None of this is easy.
I don't want it to
sound Pollyannish.
And I'm not doing this just to
have a good Thanksgiving dinner
with my sister
and sister-in-law.
I believe in this very deeply.
I've the greatest amount of
admiration for what teachers do
and yet we know that teachers
need to be part of a change.
-I think most teachers want
the best for their students.
I think they really want
to do all that they can.
I think they want um
children who are achieving.
I think they want-- they're
in teaching because they love
children and that's
what they want to do.
I think sometimes just
because of the situations,
the many children,
the lack of materials,
um the administrative
complaints.
There's a million things in
a day that can pull you down.
And I think um that--
that also can affect
the way that we
look at children.
A child who can't
read all of a sudden
becomes a problem,
instead of a challenge.
I think you have to look at
kids as, as a whole child.
You can't look at, well,
this one can't read
and this one can't do Math
and this one can write.
You have to look at
them and you always
have to look at them
in terms of what
are the things that they can do?
If you look at their gifts
and you concentrate on those,
you're going to be able
to help with the deficits.
-We've got to start
with the universities
because if the
teachers coming out
don't know anymore
than the teachers
from 30 or 40 years ago,
we're not fixing anything.
We need the
universities to start
working in their programs.
They need to do--
especially special ED
teachers, the reading teachers.
These teachers need to
know it dyslexia is.
I had a couple friends
that went back to college
and they said they learned
more about dyslexia from me
then they learned in
any of their classes.
And one did go back with
a special ED certificate.
And she said maybe
we got five minutes
about dyslexia, if that.
And that's now.
I mean, I might have expected
that 20 years ago but not now.
-When we work with
teachers, they--
they say we want
this information.
They email us all the time,
they come into our classes
and they say we really
want this information.
And then they always in
in big capital letters
with an explanation
point, "Why didn't I
learned this in teacher
training school?"
So they really want
this information
and they have-- and the
ones that are going out
there and getting it
themselves, I applaud them.
But it's not as many
as it needs to be.
-Every teacher
should be required
to have one course on
dyslexia in order to graduate.
What it is?
What the warning signs are?
How to help?
What won't help?
Because unfortunately, dyslexia
follows them all life long.
So I'll tell you.
I've talk to a lot of
junior high teachers
and high school teachers
who say "I can't believe
how many children I have coming
in as a freshman in high school
who are reading at
the third grade level.
What am I supposed
to do with them?
How do I teach them
high school science
when they can't read the book?"
So it's not just
elementary school teachers
who need to know about this.
All teachers in public
schools and private school
should have a class on
dyslexia before they're
allowed to hit the classroom.
So they'll understand
what they're looking at
and what needs to be done
and they can warn parents,
so that parents can
take action early.
-I think the biggest
challenge to raise awareness
with educators on what is
dyslexia um it was first
getting the states
to acknowledge
that dyslexia is
neurobiological.
A lot of states don't even have
it at all, don't recognize it.
And thus, these kids who
could be identified so early,
they could be screened
in pre-K and kindergarten
and then provided
in general education
great supports that really
aren't that difficult.
And science tells us,
work for these children.
They'll be all reading by
the second or third grade
or almost all, at
least 98% of them.
So the states have
to acknowledge it.
Our policymakers have
to acknowledge it.
And then we have to give
the tools to our teachers.
MARYANNE WOLF (VOICEOVER): When
anyone asks what we could do
about children with
dyslexia, the first thing
I want the world to
know is that it exists.
-It is a-- it is a different
organization of a brain that
is a wonderful brain, a
brand that it has been
here long before reading occurs.
So the absolute first thing
is a re-conceptualization
of dyslexia for everyone.
The second is that understanding
is made available to the child,
to the parent, to the
peers, and to the teachers,
and to the school systems,
not just in this country,
but around the world.
Literacy affects everyone.
Our children with
dyslexia should never
be deprived of
access to literacy.
This is probably one of our
most interesting brains,
as a species.
We cannot have it lost in
its contribution to society.
-Right now, much of what
we know about dyslexia
comes from the careful
work of many, many people
over many years,
showing the importance
of phonological ability,
and the importance
of early environment,
stimulative language,
proper instruction
in how to read.
Reading can be miss-taught.
We have very-- it's very easy
to create what are called
curriculum casualties, where you
do not appreciate how reading
is built and what
should be reinforced.
Emphasizing phonological skills,
phonics, alphabetic principle,
vocabulary-- these are things
that have been recommended
by the National Reading Panel
that are healthy and important.
Currently, brain science
doesn't add much to that.
But it offers a promise that
we can begin to understand
differences between
people that are
very subtle and
yet very profound.
-I think in this day and age,
with-- after 20, 30 years
of science that has proven
one, that dyslexia does indeed
exist, that's not reading,
writing backwards,
and that there's
real methodology
to help these children learn--
that the time has come.
We've got to stop the cycle.
And want-- we need
parents to speak out.
And then-- that's
one reason we came
up with decoding
dyslexia groups.
-We are looking to raise
dyslexia awareness.
We're hoping to get parents
to resources and supports
in a timely fashion,
quicker than we
may have gone there ourselves.
And we also want to make sure
that we're out there sharing
our story with policymakers
and people who actually
have the ability
to affect change.
From that three point
mission statement,
we've developed also talking
points or policy goals.
And those are to have a unified
definition of dyslexia in state
education codes, to
mandate early screening,
early intervention,
teacher training,
and access to a
sister technologies.
LUIS MACIAS (VOICEOVER):
Dyslexia is a global issue.
It affects up to 20%
of the population.
That's a lot of people.
Every classroom has
at least one student
who struggles to some
degree with reading,
writing, and spelling.
Parents are frustrated
because they don't understand
why and teachers who want
to help these students
but don't know how.
One word, dyslexia,
can change all that.
But it requires
knowledge, understanding,
and support to move forward.
Parents-- it's really important
to know that it's never
too late to get help for
your struggling child.
No matter how old they are
when they are diagnosed,
you can get them help.
They can become
proficient readers
and they can get their
self-esteem back.
It's not a hopeless situation.
But it does require
work on your part.
You will have to do research.
You will have to educate
yourself so that you can learn
how best to support
your child at home
and advocate for him in school.
Teachers-- how many of you
have students in your classroom
who seem so smart but yet
they struggle so much?
How often have you been banging
your head against the wall,
trying to figure out what you
can do to help this child,
believing there is
an answer but not
knowing where to
find that answer?
Take it upon yourself to
learn more about dyslexia.
You can help give
parents an answer
and you can be the reason
a child with dyslexia
will find the road
to success, instead
of the road of
constant struggle.
Schools-- if your primary
function is to educate all
children, then you cannot
keep turning a blind eye
to something that
affects one out
of five of your
student population.
Dyslexia is real.
And please understand
that early dyslexia
screening and
intervention is smart.
It makes sense.
It saves time and money
and most importantly, it
removes roadblocks that can
keep our children with dyslexia
from reaching their
full potential.
And finally, policymakers--
you have the ability
to pass laws that make it
mandatory for all schools
to screen every single
student for dyslexia.
And to also provide
children with dyslexia
was scientifically
proven instruction.
You also have the ability
to pass laws that require
every teacher training college
to include at least one course
on dyslexia, so that new
teachers can be better
prepared to meet the needs
of all their students.
With all of the dyslexia
research that exists,
there is no reason why a child
who struggles with reading,
writing, and spelling
cannot get the help they
need to become
successful students.
you will find links to websites
that provide more information
about dyslexia and to
organizations that have me
permission to raise the
awareness around the world.
Every child deserves the
opportunity to be successful.
We can do this.
We must do this, but we
have to do it together.
[CLOSING MUSIC]